Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation

Jonathan Mathers; Thomas Keeley; Laura Jones; Melanie Calvert; Paula R. Williamson; Janet Jones; Christel McMullan; Sue Wright; Bridget Young

doi:10.1186/1745-6215-16-S2-O39

Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation

Jonathan Mathers, Thomas Keeley, Laura Jones, Melanie Calvert, Paula R. Williamson, Janet Jones, Christel McMullan, Sue Wright, Bridget Young

Applied Health Sciences

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Abstract

There is a need for patient involvement when selecting trial outcomes, since their priorities may differ from healthcare professionals. Qualitative research can be used to identify outcomes that matter to patients in the development of core outcome sets (COS) and in trial feasibility studies that aim to feed patient perspectives into outcome domain selection for the definitive trial. For example, the COMET database currently includes 24 published (2-3/year) and 33 ongoing COS studies utilising interviews or focus groups with patients, carers and their representatives. However, it is unclear whether direct approaches to eliciting outcomes or indirect approaches focusing on the disease and treatment are most useful in informing trial design and outcome selection.

Original language	English
Article number	O39
Journal	Trials
Volume	16
Issue number	Supplement 2
DOIs	https://doi.org/10.1186/1745-6215-16-S2-O39
Publication status	Published - 16 Nov 2015

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title = "Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation",

abstract = "There is a need for patient involvement when selecting trial outcomes, since their priorities may differ from healthcare professionals. Qualitative research can be used to identify outcomes that matter to patients in the development of core outcome sets (COS) and in trial feasibility studies that aim to feed patient perspectives into outcome domain selection for the definitive trial. For example, the COMET database currently includes 24 published (2-3/year) and 33 ongoing COS studies utilising interviews or focus groups with patients, carers and their representatives. However, it is unclear whether direct approaches to eliciting outcomes or indirect approaches focusing on the disease and treatment are most useful in informing trial design and outcome selection.",

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AU - Mathers, Jonathan

AU - Keeley, Thomas

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AU - Calvert, Melanie

AU - Williamson, Paula R.

AU - Jones, Janet

AU - McMullan, Christel

AU - Wright, Sue

AU - Young, Bridget

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AB - There is a need for patient involvement when selecting trial outcomes, since their priorities may differ from healthcare professionals. Qualitative research can be used to identify outcomes that matter to patients in the development of core outcome sets (COS) and in trial feasibility studies that aim to feed patient perspectives into outcome domain selection for the definitive trial. For example, the COMET database currently includes 24 published (2-3/year) and 33 ongoing COS studies utilising interviews or focus groups with patients, carers and their representatives. However, it is unclear whether direct approaches to eliciting outcomes or indirect approaches focusing on the disease and treatment are most useful in informing trial design and outcome selection.

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Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation

Abstract

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