Abstract
Background: Cancer is the leading cause of death in China. People living with advanced cancer have multidimensional concerns requiring per-son-centred care. Routine use of patient-reported outcome measures (PROMs) improves outcomes. However, little evidence exists on ideal outcome measure reflects the breadth of concerns for advanced cancer patients in China.
Aims: To identify the main symptoms, concerns and the priority out-comes for advanced cancer patients and family members, explore views on introducing PROMs into routine care, and devise a model for person-centred advanced cancer care in China.
Methods: Semi-structured qualitative interviews with advanced cancer patients and family members at an inpatient oncology ward were per-formed between October and December 2019 in China. Interviews were analysed utilizing framework analysis.
Results: Patients (n=20, median age 55.0, 60% female) and family members (n=20, median age 41.0, 45% female) described distinctive but highly interrelated concerns related to living with advanced cancer across five domains: physical and psychological symptoms (e.g. pain), financial difficulties (e.g. debt ), impacts on family (e.g. change of roles), coping and adapting to the disease (e.g. decision making), and plans to the future (e.g. attitudes toward dying and palliative care). A conceptual model showing the perspectives of stakeholders has been developed. Findings confirmed that advanced cancer has far-reaching implications for patients and family members in China, extending beyond physical and psychological problems into social, practical and information needs.
Conclusion: This study advances the understanding of patients’ and family members’ experience and presents a novel multidimensional conceptual model of person-centred care. Routine use of PROMs could be beneficial to stakeholders. This insight is a critical first step in the delivery of more person-centred care for patients with advanced cancer and family members in China.
Aims: To identify the main symptoms, concerns and the priority out-comes for advanced cancer patients and family members, explore views on introducing PROMs into routine care, and devise a model for person-centred advanced cancer care in China.
Methods: Semi-structured qualitative interviews with advanced cancer patients and family members at an inpatient oncology ward were per-formed between October and December 2019 in China. Interviews were analysed utilizing framework analysis.
Results: Patients (n=20, median age 55.0, 60% female) and family members (n=20, median age 41.0, 45% female) described distinctive but highly interrelated concerns related to living with advanced cancer across five domains: physical and psychological symptoms (e.g. pain), financial difficulties (e.g. debt ), impacts on family (e.g. change of roles), coping and adapting to the disease (e.g. decision making), and plans to the future (e.g. attitudes toward dying and palliative care). A conceptual model showing the perspectives of stakeholders has been developed. Findings confirmed that advanced cancer has far-reaching implications for patients and family members in China, extending beyond physical and psychological problems into social, practical and information needs.
Conclusion: This study advances the understanding of patients’ and family members’ experience and presents a novel multidimensional conceptual model of person-centred care. Routine use of PROMs could be beneficial to stakeholders. This insight is a critical first step in the delivery of more person-centred care for patients with advanced cancer and family members in China.
| Original language | English |
|---|---|
| Pages (from-to) | 156-156 |
| Number of pages | 1 |
| Journal | Palliative Medicine |
| Volume | 35 |
| Issue number | 1S |
| DOIs | |
| Publication status | Published - 20 Sept 2021 |
| Event | 17th World Congress Of The European Association For Palliative Care - Online Duration: 6 Oct 2021 → 8 Oct 2021 |
