The national audit of primary biliary cholangitis (PBC) in the United Kingdom: defining the audit dataset and data collection system

UK-PBC audit collaborators; Laura Burke; Steve Flack; Rebecca Jones; Richard J Aspinall; Douglas Thorburn; David E Jones; Conor Braniff; Collette Thain; Andrew Yeoman; Joanna A Leithead; Palak  J Trivedi; George Mells; Laith Alrubaiy

doi:10.7759/cureus.25609

The national audit of primary biliary cholangitis (PBC) in the United Kingdom: defining the audit dataset and data collection system

UK-PBC audit collaborators, Laura Burke, Steve Flack, Rebecca Jones, Richard J Aspinall, Douglas Thorburn, David E Jones, Conor Braniff, Collette Thain, Andrew Yeoman, Joanna A Leithead, Palak J Trivedi, George Mells, Laith Alrubaiy^*

^*Corresponding author for this work

Immunology and Immunotherapy

Research output: Contribution to journal › Article › peer-review

Abstract

Primary biliary cholangitis (PBC) is a debilitating chronic liver disease that progresses to cirrhosis with attendant complications in a substantial proportion of patients. It is a major cause of liver-related morbidity and mortality in the United Kingdom (UK). The British Society of Gastroenterology (BSG) published guidelines on PBC management, which included key audit standards. Therefore, we propose the first UK-wide audit of the management of PBC, sanctioned by the BSG and the British Association for Study of the Liver (BASL), to benchmark NHS trusts and health boards against these audit standards as a guide to targeted improvement in the delivery of PBC-related health care.

Original language	English
Article number	e25609
Journal	Cureus
Volume	14
Issue number	6
DOIs	https://doi.org/10.7759/cureus.25609
Publication status	Published - 2 Jun 2022

Bibliographical note

Keywords

health service research
hepatology
quality improvement research
audit
primary biliary cholangitis

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10.7759/cureus.25609Licence: Creative Commons: Attribution (CC BY)

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UK-PBC audit collaborators, Burke, L., Flack, S., Jones, R., Aspinall, R. J., Thorburn, D., Jones, D. E., Braniff, C., Thain, C., Yeoman, A., Leithead, J. A., Trivedi, P. J., Mells, G., & Alrubaiy, L. (2022). The national audit of primary biliary cholangitis (PBC) in the United Kingdom: defining the audit dataset and data collection system. Cureus, 14(6), Article e25609. https://doi.org/10.7759/cureus.25609

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title = "The national audit of primary biliary cholangitis (PBC) in the United Kingdom: defining the audit dataset and data collection system",

abstract = "Primary biliary cholangitis (PBC) is a debilitating chronic liver disease that progresses to cirrhosis with attendant complications in a substantial proportion of patients. It is a major cause of liver-related morbidity and mortality in the United Kingdom (UK). The British Society of Gastroenterology (BSG) published guidelines on PBC management, which included key audit standards. Therefore, we propose the first UK-wide audit of the management of PBC, sanctioned by the BSG and the British Association for Study of the Liver (BASL), to benchmark NHS trusts and health boards against these audit standards as a guide to targeted improvement in the delivery of PBC-related health care.",

keywords = "health service research, hepatology, quality improvement research, audit, primary biliary cholangitis",

author = "{UK-PBC audit collaborators} and Laura Burke and Steve Flack and Rebecca Jones and Aspinall, {Richard J} and Douglas Thorburn and Jones, {David E} and Conor Braniff and Collette Thain and Andrew Yeoman and Leithead, {Joanna A} and Trivedi, {Palak J} and George Mells and Laith Alrubaiy",

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doi = "10.7759/cureus.25609",

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UK-PBC audit collaborators, Burke, L, Flack, S, Jones, R, Aspinall, RJ, Thorburn, D, Jones, DE, Braniff, C, Thain, C, Yeoman, A, Leithead, JA, Trivedi, PJ, Mells, G & Alrubaiy, L 2022, 'The national audit of primary biliary cholangitis (PBC) in the United Kingdom: defining the audit dataset and data collection system', Cureus, vol. 14, no. 6, e25609. https://doi.org/10.7759/cureus.25609

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T1 - The national audit of primary biliary cholangitis (PBC) in the United Kingdom

T2 - defining the audit dataset and data collection system

AU - UK-PBC audit collaborators

AU - Burke, Laura

AU - Flack, Steve

AU - Jones, Rebecca

AU - Aspinall, Richard J

AU - Thorburn, Douglas

AU - Jones, David E

AU - Braniff, Conor

AU - Thain, Collette

AU - Yeoman, Andrew

AU - Leithead, Joanna A

AU - Trivedi, Palak J

AU - Mells, George

AU - Alrubaiy, Laith

PY - 2022/6/2

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N2 - Primary biliary cholangitis (PBC) is a debilitating chronic liver disease that progresses to cirrhosis with attendant complications in a substantial proportion of patients. It is a major cause of liver-related morbidity and mortality in the United Kingdom (UK). The British Society of Gastroenterology (BSG) published guidelines on PBC management, which included key audit standards. Therefore, we propose the first UK-wide audit of the management of PBC, sanctioned by the BSG and the British Association for Study of the Liver (BASL), to benchmark NHS trusts and health boards against these audit standards as a guide to targeted improvement in the delivery of PBC-related health care.

AB - Primary biliary cholangitis (PBC) is a debilitating chronic liver disease that progresses to cirrhosis with attendant complications in a substantial proportion of patients. It is a major cause of liver-related morbidity and mortality in the United Kingdom (UK). The British Society of Gastroenterology (BSG) published guidelines on PBC management, which included key audit standards. Therefore, we propose the first UK-wide audit of the management of PBC, sanctioned by the BSG and the British Association for Study of the Liver (BASL), to benchmark NHS trusts and health boards against these audit standards as a guide to targeted improvement in the delivery of PBC-related health care.

KW - health service research

KW - hepatology

KW - quality improvement research

KW - audit

KW - primary biliary cholangitis

U2 - 10.7759/cureus.25609

DO - 10.7759/cureus.25609

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SN - 2168-8184

VL - 14

JO - Cureus

JF - Cureus

IS - 6

M1 - e25609

ER -

The national audit of primary biliary cholangitis (PBC) in the United Kingdom: defining the audit dataset and data collection system

Abstract

Bibliographical note

Keywords

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