Protocol for a scoping review exploring the use of patient-reported outcomes in adult social care

Research output: Contribution to journalArticlepeer-review

127 Downloads (Pure)


Introduction: Patient-reported outcomes (PROs) are measures of a person’s own views of their health, functioning and quality of life. They are typically assessed using validated, self-completed questionnaires known as patient-reported outcome measures (PROMs). PROMs are used in healthcare settings to support care planning, clinical decision-making, patient–practitioner communication and quality improvement. PROMs have a potential role in the delivery of social care where people often have multiple and complex long-term health conditions. However, the use of PROMs in this context is currently unclear. The objective of this scoping review is to explore the evidence relating to the use of PROMs in adult social care.

Methods and analyses: The electronic databases Medline (Ovid), PsychInfo (Ovid), ASSIA (ProQuest), Social Care Online (SCIE), Web of Science and EMBASE (Ovid) were searched on 29 September 2020 to identify eligible studies and other publically available documents published since 2010. A grey literature search and hand searching of citations and reference lists of the included studies will also be undertaken. No restrictions on study design or language of publication will be applied. Screening and data extraction will be completed independently by two reviewers. Quality appraisal of the included documents will use the Critical Appraisal Skills Programme and AACODS (Authority, Accuracy, Coverage, Objectivity, Date, Significance) checklists. A customised data charting table will be used for data extraction, with analysis of qualitative data using the framework method. The review findings will be presented as tables and in a narrative summary.

Ethics and dissemination: Ethical review is not required as scoping reviews are a form of secondary data analysis that synthesise data from publically available sources. Review findings will be shared with service users and other relevant stakeholders and disseminated through a peer-reviewed publication and conference presentations. This protocol is registered on the Open Science Framework (
Original languageEnglish
Article numbere045206
JournalBMJ open
Issue number4
Publication statusPublished - 13 Apr 2021

Bibliographical note

Funding Information:
This research is funded by the National Institute for Health Research (NIHR) Applied Research Collaboration (ARC) West Midlands. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.

Publisher Copyright:
© 2021 Author(s).


  • Adult
  • Humans
  • Patient Reported Outcome Measures
  • Quality of Life
  • Research Design
  • Review Literature as Topic
  • Social Support
  • Surveys and Questionnaires


Dive into the research topics of 'Protocol for a scoping review exploring the use of patient-reported outcomes in adult social care'. Together they form a unique fingerprint.

Cite this