PREFER Recommendations - Why, when and how to assess and use patient preferences in medical product decision-making

PREFER consortium

doi:10.5281/zenodo.6470922

PREFER Recommendations - Why, when and how to assess and use patient preferences in medical product decision-making

PREFER consortium

Inflammation and Ageing

Research output: Other contribution

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Abstract

Two key uses of patient preference information are to inform the choice of patient-relevant endpoints by providing information on the relative importance of what matters to patients, and to provide information on patients’ views about the acceptability of trade-offs between treatment characteristics, or other attributes of treatments or health interventions.

The PREFER Recommendations provide expert and evidence-based guidance from six years of research on when and how to design and conduct a patient preference study.

The PREFER project was a joint undertaking by 33 public and private partners with more than 130 people representing academic institutions, pharmaceutical companies, health technology agencies, and patient organisations in European countries and in the US.

Original language	English
Type	PREFER Recommendations document
Media of output	Text - Online
Publisher	Zenodo
Number of pages	287
DOIs	https://doi.org/10.5281/zenodo.6470922
Publication status	Published - 19 Apr 2022

Keywords

Patient Preference
Decision Making

Access to Document

10.5281/zenodo.6470922Licence: Creative Commons: Attribution (CC BY)

PREFER RecommendationsFinal published version, 5.53 MBLicence: Creative Commons: Attribution (CC BY)

11 Article
2 Review article

Can the General Public Be a Proxy for an “At-Risk” Group in a Patient Preference Study? A Disease Prevention Example in Rheumatoid Arthritis
DiSantostefano, R. L., Simons, G., Englbrecht, M., Humphreys, J. H., Bruce, I. N., Bywall, K. S., Radawski, C., Raza, K., Falahee, M. & Veldwijk, J., Feb 2024, In: Medical Decision Making. 44, 2, p. 189-202 14 p.
Research output: Contribution to journal › Article › peer-review

Open Access
File
41 Downloads (Pure)
Maximum Acceptable Risk Estimation based on a Discrete Choice Experiment and Probabilistic Threshold Technique
Veldwijk, J., DiSantostefano, R. L., Janssen, E., Simons, G., Englbrecht, M., Karin, S. B., Radawski, C., Raza, K., Hauber, B. & Falahee, M., 30 Aug 2023, (E-pub ahead of print) In: Patient.
Research output: Contribution to journal › Article › peer-review

Open Access
File
115 Downloads (Pure)
Patients as research partners in preference studies: Learnings from IMI-PREFER
Smith, M., Janssens, R., Jiminez-Moreno, A. C., Cleemput, I., Muller, M., Oliveri, S., Simons, G., Strammiello, V., Huys, I. & Falahee, M., 7 Apr 2023, In: Research Involvement & Engagement. 9, 1, 14 p., 21.
Research output: Contribution to journal › Article › peer-review

Open Access
File
79 Downloads (Pure)
Preferences for preventive treatments for rheumatoid arthritis: discrete choice survey in the United Kingdom, Germany, and Romania
Simons, G., Veldwijk, J., DiSantostefano, R., Englbrecht, M., Radawski, C., Karin, S. B., Valor Mendez, L., Hauber, B., Raza, K. & Falahee, M., Feb 2023, In: Rheumatology. 62, 2, p. 596–605 keac397.
Research output: Contribution to journal › Article › peer-review

Open Access
File
137 Downloads (Pure)
Research Priorities to Increase Confidence in and Acceptance of Health Preference Research: What questions should be prioritized now?
DiSantostefano, R. L., Smith, I. P., Falahee, M., Jiminez-Moreno, A. C., Oliveri, S., Veldwijk, J., de Wit, G. A., Janssen, E., Berlin, C. & Groothuis-Oudshoorn , C. G., 16 Dec 2023, (E-pub ahead of print) In: The Patient - Patient-Centred Outcomes Research. 12 p.
Research output: Contribution to journal › Article › peer-review

Open Access
File
122 Downloads (Pure)
Acceptable risks of treatments to prevent rheumatoid arthritis amongst first-degree relatives: demographic and psychological predictors of risk tolerances
Simons, G., Janssen, E., Veldwijk, J., DiSantostefano, R. L., Englbrecht, M., Radawski, C., valor-mendez, L., Humphreys, J., Bruce, I. N., Hauber, B., Raza, K. & Falahee, M., 13 Dec 2022, (E-pub ahead of print) In: RMD Open. 8, 2, 10 p., e002593.
Research output: Contribution to journal › Article › peer-review

Open Access
File
55 Downloads (Pure)
Exploring preferences of at-risk individuals for preventive treatments for rheumatoid arthritis
Simons, G., Karin, S. B., Englbrecht, M., Johansson, E. C., DiSantostefano, R. L., Radawski, C., Veldwijk, J., Raza, K. & Falahee, M., 30 Sept 2022, (E-pub ahead of print) In: Scandinavian Journal of Rheumatology. p. 1-11 11 p.
Research output: Contribution to journal › Article › peer-review

Open Access
File
61 Downloads (Pure)

1 Finished

H2020_IMI JU_PREFER
Falahee, M. (Co-Investigator) & Raza, K. (Principal Investigator)
European Commission
1/10/16 → 31/05/22
Project: EU

IMI PREFER webpage
Falahee, M.
23/08/22
1 Media contribution
Press/Media: Press / Media

Cite this

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abstract = "Two key uses of patient preference information are to inform the choice of patient-relevant endpoints by providing information on the relative importance of what matters to patients, and to provide information on patients{\textquoteright} views about the acceptability of trade-offs between treatment characteristics, or other attributes of treatments or health interventions. The PREFER Recommendations provide expert and evidence-based guidance from six years of research on when and how to design and conduct a patient preference study. The PREFER project was a joint undertaking by 33 public and private partners with more than 130 people representing academic institutions, pharmaceutical companies, health technology agencies, and patient organisations in European countries and in the US.",

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PREFER Recommendations - Why, when and how to assess and use patient preferences in medical product decision-making

Abstract

Keywords

Access to Document

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Research output

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Press/Media

Cite this