“Everyone Has a Role”: Perspectives of Service Users With First-Episode Psychosis, Family Caregivers, Treatment Providers, and Policymakers on Responsibility for Supporting Individuals With Mental Health Problems

Megan A. Pope, Gerald Jordan, Shruthi Venkataraman, Ashok K. Malla, Srividya N. Iyer*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

14 Citations (Scopus)

Abstract

Varying perceptions of who should be responsible for supporting individuals with mental health problems may contribute to their needs remaining unmet. A qualitative descriptive design was used to explore these perceptions among key stakeholders. Focus groups were conducted with 13 service users, 12 family members, and 18 treatment providers from an early psychosis intervention program in Montreal, Canada. Individual interviews were conducted with six mental health policy-/decision-makers. Participants across stakeholder groups assigned a range of responsibilities to individuals with mental health problems, stakeholders in these individuals’ immediate and extended social networks (e.g., families), macro-level stakeholders with influence (e.g., government), and society as a whole. Perceived failings of the health care system and the need for greater sharing of roles and responsibilities also emerged as important themes. Our findings suggest that different stakeholders should collectively assume certain responsibilities and that systems-level failings may contribute to unmet needs for mental health support.

Original languageEnglish
Pages (from-to)1299-1312
Number of pages14
JournalQualitative Health Research
Volume29
Issue number9
DOIs
Publication statusPublished - 1 Jul 2019

Bibliographical note

Funding Information:
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was supported by a combination of grants from the National Institute of Mental Health (MH093303) and CIHR.

Funding Information:
The authors declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article: Megan A. Pope received graduate funding from the Canadian Institutes of Health Research (CIHR) and the Fonds de Recherche du Québec - Santé (FRQS) for her Master’s research, of which this article forms a part. Gerald Jordan is funded by CIHR and FRQS postdoctoral grants and has received funding from the McGill University Department of Psychiatry for his doctoral research. Shruthi Venkataraman has no disclosures to report. Ashok K. Malla is funded through the Canada Research Chair Program and has received funding from CIHR, FRQS, the National Institutes of Health (NIH), and Grand Challenges Canada. Unrelated to the present study, he has received research funding from BMS and Lundbeck as well as honoraria related to CME lectures, research consultation, and advisory board participation from Otsuka and Lundbeck. None of these pose any conflict of interest in relation to the present manuscript. Srividya N. Iyer has received funds from CIHR. She is funded by a CIHR New Investigator Salary award and previously received a salary award from FRQS.

Publisher Copyright:
© The Author(s) 2018.

Keywords

  • access to health care
  • adaptation
  • adolescents
  • agency
  • Canada
  • coping
  • empowerment
  • enduring
  • families
  • health
  • health care
  • mental health and illness
  • policy
  • policy analysis
  • power
  • psychosis
  • qualitative description
  • recovery
  • responsibility
  • schizophrenia
  • support needs
  • teamwork
  • young adults
  • youth

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

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