Valuing end-of-life care: translation and content validation of the ICECAP-SCM measure

Research output: Contribution to journalArticlepeer-review

Authors

  • Uta Gühne
  • Marie Dorow
  • Jessica Grothe
  • Janine Stein
  • Margrit Löbner
  • Judith Dams
  • Joanna Coast
  • Hans-Helmut König
  • Steffi G Riedel-Heller

Colleges, School and Institutes

External organisations

  • Universität Leipzig
  • University Medical Centre Hamburg-Eppendorf (UKE)
  • University of Bristol

Abstract

BackgroundThe evaluation of care strategies at the end of life is particularly important due to the globally increasing proportion of very old people in need of care. The ICECAP-Supportive Care Measure is a self-complete questionnaire developed in the UK to evaluate palliative and supportive care by measuring patient’s wellbeing in terms of ‘capability’. It is a new measure with high potential for broad and international use. The aims of this study were the translation of the ICECAP-Supportive Care Measure from English into German and the content validation of this version.
MethodsA multi-step and team-based translation process based on the TRAPD model was performed. An expert survey was carried out to assess content validity. The expert panel (n = 20) consisted of four expert groups: representative seniors aged 65+, patients aged 65+ living in residential care, patients aged 65+ receiving end-of-life care, and professionals in end-of-life care.
ResultsThe German version of the ICECAP-Supportive Care Measure showed an excellent content validity on both item- and scale-level. In addition, a high agreement regarding the length of the single items and the total length of the questionnaire as well as the number of answer categories was reached.
ConclusionsThe German ICECAP-SCM is a valid tool to assess the quality of life at the end of life that is suitable for use in different settings. The questionnaire may be utilized in multinational clinical and economic evaluations of end-of-life care.

Bibliographic note

Funding Information: This work was supported by the Federal Ministry of Education and Research [grant number 01GL1725A]. The funding agency was in no way involved in the conception of the study or in the collection, analysis and interpretation of the data or in writing of the manuscript. We acknowledge support from Leipzig University for Open Access Publishing. Open Access funding enabled and organized by Projekt DEAL. Funding Information: We would like to thank all research participants, without whom this work would not have been feasible, and Joanna Coast and Eileen Sutton for providing the English original version of the ICECAP-SCM. We would also like to thank Carolyn Edwards and Paula Liegert for their support.

Details

Original languageEnglish
Article number29
JournalBMC Palliative Care
Volume20
Issue number1
Publication statusPublished - 8 Feb 2021

Keywords

  • Hospices, Palliative care, Quality of life, Questionnaires, Translations

ASJC Scopus subject areas