The use of Patient-Reported Outcomes in patients treated with maintenance hemodialysis: a perspective

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The use of Patient-Reported Outcomes in patients treated with maintenance hemodialysis : a perspective. / Anderson, Nicola; Calvert, Melanie; Cockwell, Paul; Dutton, Mary; Kyte, Derek.

In: American Journal of Kidney Diseases, Vol. 74, No. 3, 09.2019, p. 399-406.

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@article{09b71b031821429390391b02e3a7fabc,
title = "The use of Patient-Reported Outcomes in patients treated with maintenance hemodialysis: a perspective",
abstract = "There is increasing interest in the integration of patient-reported outcomes (PROs) into health care research and clinical practice for the benefit of patients with end-stage kidney disease receiving hemodialysis. In a research setting, PROs can be used as a patient-centered primary or secondary outcome in clinical studies. In routine care, PRO data may be used to support service delivery through benchmarking and audit or inform and enhance the care of the individual patient by improving patient-clinician communication. Despite evidence demonstrating the potential benefits of PROs and prioritization of these outcomes by patients, their use in kidney disease remains limited. Although there are significant methodological and operational challenges for the widespread integration of PROs, there is now consensus that this area should be at the forefront of clinical research and implementation science. We discuss the current use of PROs for patients with end-stage kidney disease receiving hemodialysis and identify a roadmap for increasing the evidence base and introducing PROs into mainstream clinical practice.",
keywords = "Haemodialysis, patient-reported outcomes, routine practice, haemodialysis research, End Stage Renal Disease (ESRD), clinical trial",
author = "Nicola Anderson and Melanie Calvert and Paul Cockwell and Mary Dutton and Derek Kyte",
year = "2019",
month = sep,
doi = "10.1053/j.ajkd.2019.01.035",
language = "English",
volume = "74",
pages = "399--406",
journal = "American Journal of Kidney Diseases",
issn = "0272-6386",
publisher = "Elsevier",
number = "3",

}

RIS

TY - JOUR

T1 - The use of Patient-Reported Outcomes in patients treated with maintenance hemodialysis

T2 - a perspective

AU - Anderson, Nicola

AU - Calvert, Melanie

AU - Cockwell, Paul

AU - Dutton, Mary

AU - Kyte, Derek

PY - 2019/9

Y1 - 2019/9

N2 - There is increasing interest in the integration of patient-reported outcomes (PROs) into health care research and clinical practice for the benefit of patients with end-stage kidney disease receiving hemodialysis. In a research setting, PROs can be used as a patient-centered primary or secondary outcome in clinical studies. In routine care, PRO data may be used to support service delivery through benchmarking and audit or inform and enhance the care of the individual patient by improving patient-clinician communication. Despite evidence demonstrating the potential benefits of PROs and prioritization of these outcomes by patients, their use in kidney disease remains limited. Although there are significant methodological and operational challenges for the widespread integration of PROs, there is now consensus that this area should be at the forefront of clinical research and implementation science. We discuss the current use of PROs for patients with end-stage kidney disease receiving hemodialysis and identify a roadmap for increasing the evidence base and introducing PROs into mainstream clinical practice.

AB - There is increasing interest in the integration of patient-reported outcomes (PROs) into health care research and clinical practice for the benefit of patients with end-stage kidney disease receiving hemodialysis. In a research setting, PROs can be used as a patient-centered primary or secondary outcome in clinical studies. In routine care, PRO data may be used to support service delivery through benchmarking and audit or inform and enhance the care of the individual patient by improving patient-clinician communication. Despite evidence demonstrating the potential benefits of PROs and prioritization of these outcomes by patients, their use in kidney disease remains limited. Although there are significant methodological and operational challenges for the widespread integration of PROs, there is now consensus that this area should be at the forefront of clinical research and implementation science. We discuss the current use of PROs for patients with end-stage kidney disease receiving hemodialysis and identify a roadmap for increasing the evidence base and introducing PROs into mainstream clinical practice.

KW - Haemodialysis

KW - patient-reported outcomes

KW - routine practice

KW - haemodialysis research

KW - End Stage Renal Disease (ESRD)

KW - clinical trial

U2 - 10.1053/j.ajkd.2019.01.035

DO - 10.1053/j.ajkd.2019.01.035

M3 - Article

VL - 74

SP - 399

EP - 406

JO - American Journal of Kidney Diseases

JF - American Journal of Kidney Diseases

SN - 0272-6386

IS - 3

ER -