The relative importance of undesirable truths

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The relative importance of undesirable truths. / Bortolotti, Lisa.

In: Medicine, Health Care and Philosophy, Vol. 16, No. 4, 01.11.2013, p. 683-690.

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@article{aad12fbb981548b6ad52b7161b93dc47,
title = "The relative importance of undesirable truths",
abstract = "The right not to know is often defended on the basis of the principle of respect for personal autonomy. If I choose not to acquire personal information that impacts on my future prospects, such a choice should be respected, because I should be able to decide whether to access information about myself and how to use it. But, according to the incoherence objection to the right not to know in the context of genetic testing, the choice not to acquire genetic information undermines the capacity for autonomous decision making. The claim is that it is incoherent to defend a choice that is inimical to autonomy by appealing to autonomy. In this paper, I suggest that the choice not to know in the context of genetic testing does not undermine self-authorship, which is a key aspect of autonomous decision making. In the light of this, the incoherence objection to the right not to know seems less compelling.",
keywords = "Right not to know, Genetic testing, Personal narratives, Autonomy, Open future, Self-authorship, Self-knowledge",
author = "Lisa Bortolotti",
year = "2013",
month = nov,
day = "1",
doi = "10.1007/s11019-012-9449-x",
language = "English",
volume = "16",
pages = "683--690",
journal = "Medicine, Health Care and Philosophy",
issn = "1386-7423",
publisher = "Springer",
number = "4",

}

RIS

TY - JOUR

T1 - The relative importance of undesirable truths

AU - Bortolotti, Lisa

PY - 2013/11/1

Y1 - 2013/11/1

N2 - The right not to know is often defended on the basis of the principle of respect for personal autonomy. If I choose not to acquire personal information that impacts on my future prospects, such a choice should be respected, because I should be able to decide whether to access information about myself and how to use it. But, according to the incoherence objection to the right not to know in the context of genetic testing, the choice not to acquire genetic information undermines the capacity for autonomous decision making. The claim is that it is incoherent to defend a choice that is inimical to autonomy by appealing to autonomy. In this paper, I suggest that the choice not to know in the context of genetic testing does not undermine self-authorship, which is a key aspect of autonomous decision making. In the light of this, the incoherence objection to the right not to know seems less compelling.

AB - The right not to know is often defended on the basis of the principle of respect for personal autonomy. If I choose not to acquire personal information that impacts on my future prospects, such a choice should be respected, because I should be able to decide whether to access information about myself and how to use it. But, according to the incoherence objection to the right not to know in the context of genetic testing, the choice not to acquire genetic information undermines the capacity for autonomous decision making. The claim is that it is incoherent to defend a choice that is inimical to autonomy by appealing to autonomy. In this paper, I suggest that the choice not to know in the context of genetic testing does not undermine self-authorship, which is a key aspect of autonomous decision making. In the light of this, the incoherence objection to the right not to know seems less compelling.

KW - Right not to know

KW - Genetic testing

KW - Personal narratives

KW - Autonomy

KW - Open future

KW - Self-authorship

KW - Self-knowledge

U2 - 10.1007/s11019-012-9449-x

DO - 10.1007/s11019-012-9449-x

M3 - Article

C2 - 23160857

VL - 16

SP - 683

EP - 690

JO - Medicine, Health Care and Philosophy

JF - Medicine, Health Care and Philosophy

SN - 1386-7423

IS - 4

ER -