Skin picking in people with Prader-Willi syndrome: phenomenology and management
Research output: Contribution to journal › Article › peer-review
Authors
Colleges, School and Institutes
External organisations
- Great Ormond St Hosp Children
Abstract
Skin picking is highly prevalent in people with Prader-Willi syndrome (PWS). This study addressed the temporal (frequency, duration) and wider characteristics (e.g. type of skin picked, apparent motivations, or management strategies) of skin picking to inform intervention strategies. Nineteen parents/carers who observe skin picking shown by the person they care for completed a semi-structured interview. Results were consistent with previous research but advanced the field by finding that most participants picked skin with an imperfection and that parents/carers most commonly use distraction as a management strategy. Interventions that are behavioural, support emotion regulation and/ or are used in the typically developing population are therefore likely to be beneficial for future research.
Details
Original language | English |
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Journal | Journal of Autism and Developmental Disorders |
Early online date | 3 Jun 2020 |
Publication status | E-pub ahead of print - 3 Jun 2020 |
Keywords
- self-injurious behaviour, Neurodevelopmental disorder, Prader-Willi Syndrome, skin picking