Seeking help for first-episode psychosis: a family narrative

Research output: Contribution to journalArticle

Authors

  • Sunita Channa
  • Colin Palmer
  • Clare Barker
  • Maximillian Birchwood

Colleges, School and Institutes

External organisations

  • Division of Health and Wellbeing, Warwick Medical School, University of Warwick, Birmingham, UK

Abstract

AIM: Delayed help-seeking can have serious consequences for young people with first-episode psychosis (FEP), in terms of treatment response and outcome. Young people's narratives about help-seeking are important to understand why delays occur; however, as the majority of help-seeking is initiated by family members, through a general practitioner (GP), family narratives are also of interest. The aim of this study was to explore help-seeking for FEP, including first contact with a GP.

METHOD: A semistructured interview was developed using a topic guide. Framework analysis was used to analyse data and a deductive qualitative method for applied research. The study was set in Birmingham, UK. Participants were interviewed separately by researchers. Joint coding and identification of 14 complete family dyads was then explored for emerging patterns within the family context.

RESULTS: Family responses to FEP that had an impact on help-seeking behaviour included withdrawal, normalization, stigma, fear and guilt; poor knowledge of availability, and means of access to mental health services was also important. Help-seeking was usually instigated by a family member through a GP, although this was not the case for two of our families, and while contact with GP was generally described as a positive experience for several families, it was hindered by poor communication and lack of engagement.

CONCLUSION: Families play a key role in facilitating help-seeking for FEP, but attempts are often derailed by complex family responses to illness. Public mental health interventions should focus on increasing community awareness of psychosis and improving access and alternative routes to mental health services. However, improvements will have little impact unless primary care and other help-seeking sources engage in open and easy dialogue with the families and young people trying to access their specialist services.

Bibliographic note

© 2014 Wiley Publishing Asia Pty Ltd.

Details

Original languageEnglish
JournalEarly Intervention in Psychiatry
Early online date9 Oct 2014
Publication statusPublished - 2015

Keywords

  • carers, families, help-seeking delays, psychosis, young people