Respect for autonomy: its demands and limits in biobanking.

Research output: Contribution to journalArticle

Authors

Colleges, School and Institutes

Abstract

This paper argues that the demands of respect for autonomy in the context of biobanking are fewer and more limited than is often supposed. It discusses the difficulties of agreeing a concept of autonomy from which duties can easily be derived, and suggests an alternative way to determine what respect for autonomy in a biobanking context requires. These requirements, it argues, are limited to provision of adequate information and non-coercion. While neither of these is in itself negligible, this is a smaller set of demands than is often suggested. In particular, it is argued here that securing 'one time consent' is consistent with respect for autonomy. Finally, the paper notes that while the demands of respect for autonomy may be less than some suppose, respecting autonomy is not the only way in which biobanks and their users may have moral duties to donors.

Details

Original languageEnglish
Pages (from-to)259-68
Number of pages10
JournalHealth Care Analysis
Volume19
Issue number3
Publication statusPublished - 1 Sep 2011