On the brink of genuinely collaborative care: experience-based co-design in mental health

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@article{78e753ed26c54d76a582823c4b4d8005,
title = "On the brink of genuinely collaborative care: experience-based co-design in mental health",
abstract = "Inpatient mental health services in the United Kingdom are currently dissatisfactory for service-users and staff. For young people with psychosis, being hospitalized is often distressing, and can lead to disengagement with mental health services. This article describes how we took three qualitative research studies about hospitalization in early psychosis (exploring the perspectives of service-users, parents, and staff) and translated them into service improvements developed in collaboration with a range of stakeholders, including service-users, carers, community and inpatient staff, and management. We used an adapted form of experience-based co-design (EBCD), a participatory action-research method for collaboratively improving health care services. The use of EBCD is still relatively novel in mental health settings, and we discuss how we adapted the methodology, and some of the implications of using EBCD with vulnerable populations in complex services. We reflect on both the disappointments and successes and give some recommendations for future research and methodological development.",
keywords = "research, action, research, collaborative, mental health nursing, mental health and illness, lived experience, young adults, health care, acute / critical, early psychosis, health care, users{\textquoteright} experience, health care, work environment",
author = "Michael Larkin and Boden, {Zo{\"e} V R} and Elizabeth Newton",
note = "{\textcopyright} The Author(s) 2015.",
year = "2015",
doi = "10.1177/1049732315576494",
language = "English",
journal = "Qualitative Health Research",
issn = "1049-7323",
publisher = "SAGE Publications",

}

RIS

TY - JOUR

T1 - On the brink of genuinely collaborative care

T2 - experience-based co-design in mental health

AU - Larkin, Michael

AU - Boden, Zoë V R

AU - Newton, Elizabeth

N1 - © The Author(s) 2015.

PY - 2015

Y1 - 2015

N2 - Inpatient mental health services in the United Kingdom are currently dissatisfactory for service-users and staff. For young people with psychosis, being hospitalized is often distressing, and can lead to disengagement with mental health services. This article describes how we took three qualitative research studies about hospitalization in early psychosis (exploring the perspectives of service-users, parents, and staff) and translated them into service improvements developed in collaboration with a range of stakeholders, including service-users, carers, community and inpatient staff, and management. We used an adapted form of experience-based co-design (EBCD), a participatory action-research method for collaboratively improving health care services. The use of EBCD is still relatively novel in mental health settings, and we discuss how we adapted the methodology, and some of the implications of using EBCD with vulnerable populations in complex services. We reflect on both the disappointments and successes and give some recommendations for future research and methodological development.

AB - Inpatient mental health services in the United Kingdom are currently dissatisfactory for service-users and staff. For young people with psychosis, being hospitalized is often distressing, and can lead to disengagement with mental health services. This article describes how we took three qualitative research studies about hospitalization in early psychosis (exploring the perspectives of service-users, parents, and staff) and translated them into service improvements developed in collaboration with a range of stakeholders, including service-users, carers, community and inpatient staff, and management. We used an adapted form of experience-based co-design (EBCD), a participatory action-research method for collaboratively improving health care services. The use of EBCD is still relatively novel in mental health settings, and we discuss how we adapted the methodology, and some of the implications of using EBCD with vulnerable populations in complex services. We reflect on both the disappointments and successes and give some recommendations for future research and methodological development.

KW - research, action

KW - research, collaborative

KW - mental health nursing

KW - mental health and illness

KW - lived experience

KW - young adults

KW - health care

KW - acute / critical

KW - early psychosis

KW - health care, users’ experience

KW - health care, work environment

U2 - 10.1177/1049732315576494

DO - 10.1177/1049732315576494

M3 - Article

C2 - 25829467

JO - Qualitative Health Research

JF - Qualitative Health Research

SN - 1049-7323

ER -