Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior: A Cross-Sectional and Longitudinal Study

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@article{bfa466aace4c429795116635a05c4e25,
title = "Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior:: A Cross-Sectional and Longitudinal Study",
abstract = "It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB ( n = 18) or low/no CB ( n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being. Stress relating specifically to their child's genetic syndrome reduced with age, highlighting the need for further exploration in this area.",
keywords = "intellectual disabilities , syndrome , challenging behaviour , mental health",
author = "Dawn Adams and Samantha Clarke and Gemma Griffith and Pat Howlin and Jo Moss and Jane Petty and Penny Tunnicliffe and Chris Oliver",
year = "2018",
month = "5",
day = "1",
doi = "10.1352/1944-7558-123.3.241",
language = "English",
volume = "123",
pages = "241--253",
journal = "American Journal on Intellectual and Developmental Disabilities",
issn = "1944-7515",
publisher = "American Association on Intellectual and Developmental Disabilities",
number = "3",

}

RIS

TY - JOUR

T1 - Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior:

T2 - A Cross-Sectional and Longitudinal Study

AU - Adams, Dawn

AU - Clarke, Samantha

AU - Griffith, Gemma

AU - Howlin, Pat

AU - Moss, Jo

AU - Petty, Jane

AU - Tunnicliffe, Penny

AU - Oliver, Chris

PY - 2018/5/1

Y1 - 2018/5/1

N2 - It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB ( n = 18) or low/no CB ( n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being. Stress relating specifically to their child's genetic syndrome reduced with age, highlighting the need for further exploration in this area.

AB - It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB ( n = 18) or low/no CB ( n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being. Stress relating specifically to their child's genetic syndrome reduced with age, highlighting the need for further exploration in this area.

KW - intellectual disabilities

KW - syndrome

KW - challenging behaviour

KW - mental health

U2 - 10.1352/1944-7558-123.3.241

DO - 10.1352/1944-7558-123.3.241

M3 - Article

VL - 123

SP - 241

EP - 253

JO - American Journal on Intellectual and Developmental Disabilities

JF - American Journal on Intellectual and Developmental Disabilities

SN - 1944-7515

IS - 3

ER -