Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review

Research output: Contribution to journalArticlepeer-review

Standard

Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities : a systematic review. / Flynn, Samantha; Vereenooghe, Leen; Hastings, Richard P; Adams, Dawn; Cooper, Sally-Ann; Gore, Nick; Hatton, Chris; Hood, Kerry; Jahoda, Andrew; Langdon, Peter E; McNamara, Rachel; Oliver, Chris; Roy, Ashok; Totsika, Vasiliki; Waite, Jane.

In: Clinical Psychology Review, Vol. 57, 01.11.2017, p. 32-44.

Research output: Contribution to journalArticlepeer-review

Harvard

Flynn, S, Vereenooghe, L, Hastings, RP, Adams, D, Cooper, S-A, Gore, N, Hatton, C, Hood, K, Jahoda, A, Langdon, PE, McNamara, R, Oliver, C, Roy, A, Totsika, V & Waite, J 2017, 'Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review', Clinical Psychology Review, vol. 57, pp. 32-44. https://doi.org/10.1016/j.cpr.2017.08.006

APA

Flynn, S., Vereenooghe, L., Hastings, R. P., Adams, D., Cooper, S-A., Gore, N., Hatton, C., Hood, K., Jahoda, A., Langdon, P. E., McNamara, R., Oliver, C., Roy, A., Totsika, V., & Waite, J. (2017). Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review. Clinical Psychology Review, 57, 32-44. https://doi.org/10.1016/j.cpr.2017.08.006

Vancouver

Author

Flynn, Samantha ; Vereenooghe, Leen ; Hastings, Richard P ; Adams, Dawn ; Cooper, Sally-Ann ; Gore, Nick ; Hatton, Chris ; Hood, Kerry ; Jahoda, Andrew ; Langdon, Peter E ; McNamara, Rachel ; Oliver, Chris ; Roy, Ashok ; Totsika, Vasiliki ; Waite, Jane. / Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities : a systematic review. In: Clinical Psychology Review. 2017 ; Vol. 57. pp. 32-44.

Bibtex

@article{6bc1a20c0f55496187300e9bb6cd04ac,
title = "Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review",
abstract = "Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n=41,232) and full-text articles (n=573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study - indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.",
keywords = "Intellectual disabilities, Mental health, Mental illness, Psychiatric disorder, Mental well-being, Measurement",
author = "Samantha Flynn and Leen Vereenooghe and Hastings, {Richard P} and Dawn Adams and Sally-Ann Cooper and Nick Gore and Chris Hatton and Kerry Hood and Andrew Jahoda and Langdon, {Peter E} and Rachel McNamara and Chris Oliver and Ashok Roy and Vasiliki Totsika and Jane Waite",
note = "Copyright {\textcopyright} 2017 Elsevier Ltd. All rights reserved.",
year = "2017",
month = nov,
day = "1",
doi = "10.1016/j.cpr.2017.08.006",
language = "English",
volume = "57",
pages = "32--44",
journal = "Clinical Psychology Review",
issn = "0272-7358",
publisher = "Elsevier",

}

RIS

TY - JOUR

T1 - Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities

T2 - a systematic review

AU - Flynn, Samantha

AU - Vereenooghe, Leen

AU - Hastings, Richard P

AU - Adams, Dawn

AU - Cooper, Sally-Ann

AU - Gore, Nick

AU - Hatton, Chris

AU - Hood, Kerry

AU - Jahoda, Andrew

AU - Langdon, Peter E

AU - McNamara, Rachel

AU - Oliver, Chris

AU - Roy, Ashok

AU - Totsika, Vasiliki

AU - Waite, Jane

N1 - Copyright © 2017 Elsevier Ltd. All rights reserved.

PY - 2017/11/1

Y1 - 2017/11/1

N2 - Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n=41,232) and full-text articles (n=573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study - indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.

AB - Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n=41,232) and full-text articles (n=573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study - indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.

KW - Intellectual disabilities

KW - Mental health

KW - Mental illness

KW - Psychiatric disorder

KW - Mental well-being

KW - Measurement

U2 - 10.1016/j.cpr.2017.08.006

DO - 10.1016/j.cpr.2017.08.006

M3 - Article

C2 - 28821007

VL - 57

SP - 32

EP - 44

JO - Clinical Psychology Review

JF - Clinical Psychology Review

SN - 0272-7358

ER -