Female family carers’ experiences of violent, abusive or harmful behaviour by the older person for whom they care: a case of epistemic injustice?

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@article{38c5eeee4de949aea28815f0d00c3d62,
title = "Female family carers{\textquoteright} experiences of violent, abusive or harmful behaviour by the older person for whom they care: a case of epistemic injustice?",
abstract = "Family carers affected by violent, abusive or harmful behaviour by the older person for whom they care face social and epistemic challenges in developing and sharing knowledge about their experiences. These difficulties have contributed to a situation in which there is a paucity of evidence and public discourse about how we understand violence and harm instigated by people who have care needs or are {\textquoteleft}vulnerable{\textquoteright}. This paper reports the findings of a qualitative study that involved twelve indepth interviews with female carers affected by violence, abuse or harm. The study was informed theoretically by Miranda Fricker{\textquoteright}s concept of epistemic injustice which was used as a framework for analysis. There were two principal findings: 1) Carers were sensitive to anticipatory stigma and loss of moral autonomy. As a result, they self-censured what they shared and, at times, were met with subtle but powerful processes of silencing. 2) Carers had limited linguistic and conceptual resources to explain the emotional and social aspects of the harm they experienced, exacerbated by implicit social norms about the {\textquoteleft}private{\textquoteright} and gendered nature of familial care. To conclude, we discuss the implications of these findings for sociological research and health and social care practice. ",
keywords = "abuse, caring, epistemic injustice, families, older age, violence",
author = "Louise Isham and Caroline Bradbury-Jones and Alistair Hewison",
year = "2020",
month = jan,
doi = "10.1111/1467-9566.12986",
language = "English",
volume = "42",
pages = "80--94",
journal = "Sociology of Health and Illness",
issn = "0141-9889",
publisher = "Wiley Online Library",
number = "1",

}

RIS

TY - JOUR

T1 - Female family carers’ experiences of violent, abusive or harmful behaviour by the older person for whom they care

T2 - a case of epistemic injustice?

AU - Isham, Louise

AU - Bradbury-Jones, Caroline

AU - Hewison, Alistair

PY - 2020/1

Y1 - 2020/1

N2 - Family carers affected by violent, abusive or harmful behaviour by the older person for whom they care face social and epistemic challenges in developing and sharing knowledge about their experiences. These difficulties have contributed to a situation in which there is a paucity of evidence and public discourse about how we understand violence and harm instigated by people who have care needs or are ‘vulnerable’. This paper reports the findings of a qualitative study that involved twelve indepth interviews with female carers affected by violence, abuse or harm. The study was informed theoretically by Miranda Fricker’s concept of epistemic injustice which was used as a framework for analysis. There were two principal findings: 1) Carers were sensitive to anticipatory stigma and loss of moral autonomy. As a result, they self-censured what they shared and, at times, were met with subtle but powerful processes of silencing. 2) Carers had limited linguistic and conceptual resources to explain the emotional and social aspects of the harm they experienced, exacerbated by implicit social norms about the ‘private’ and gendered nature of familial care. To conclude, we discuss the implications of these findings for sociological research and health and social care practice.

AB - Family carers affected by violent, abusive or harmful behaviour by the older person for whom they care face social and epistemic challenges in developing and sharing knowledge about their experiences. These difficulties have contributed to a situation in which there is a paucity of evidence and public discourse about how we understand violence and harm instigated by people who have care needs or are ‘vulnerable’. This paper reports the findings of a qualitative study that involved twelve indepth interviews with female carers affected by violence, abuse or harm. The study was informed theoretically by Miranda Fricker’s concept of epistemic injustice which was used as a framework for analysis. There were two principal findings: 1) Carers were sensitive to anticipatory stigma and loss of moral autonomy. As a result, they self-censured what they shared and, at times, were met with subtle but powerful processes of silencing. 2) Carers had limited linguistic and conceptual resources to explain the emotional and social aspects of the harm they experienced, exacerbated by implicit social norms about the ‘private’ and gendered nature of familial care. To conclude, we discuss the implications of these findings for sociological research and health and social care practice.

KW - abuse

KW - caring

KW - epistemic injustice

KW - families

KW - older age

KW - violence

UR - http://www.scopus.com/inward/record.url?scp=85073790147&partnerID=8YFLogxK

U2 - 10.1111/1467-9566.12986

DO - 10.1111/1467-9566.12986

M3 - Article

VL - 42

SP - 80

EP - 94

JO - Sociology of Health and Illness

JF - Sociology of Health and Illness

SN - 0141-9889

IS - 1

ER -