Experiences of South Asian patients in early inflammatory arthritis clinic: a qualitative interview study

Research output: Contribution to journalArticle

Authors

Colleges, School and Institutes

External organisations

  • Faculty of Medicine, Dentistry and Health, University of Sheffield, United Kingdom
  • School of Health Sciences, Faculty of Environment and Life Sciences, University of Southampton, United Kingdom

Abstract

Objective: The aim was to explore how UK South Asian patients living with RA interact with health care professionals and experience receiving health information in an early inflammatory arthritis clinic. Methods: A semi-structured interview schedule, designed in conjunction with a patient partner, was used for face-to-face interviews. South Asian participants with RA were recruited from Central Manchester University Hospitals National Health Service Foundation Trust. Data were recorded and transcribed by an independent company. Data were analysed using inductive thematic analysis. Results: Fifteen participants were interviewed. Three predominant themes emerged around participants' experiences and interaction with health care professionals in early inflammatory arthritis clinic. First, 'the personal experiences of RA and cultural link to early inflammatory arthritis clinic', where participants described the impact of RA as individuals and their altered roles within their cultural setting. Second, 'experiences of interacting and receiving information in the early inflammatory arthritis clinic', where participants described their limited engagement with health care professionals and the quality of information discussed in the clinic. Third, 'views on future content for early inflammatory arthritis clinics', where participants highlighted new innovative ideas to build on current practice. Conclusion: We believe this to be the first study to generate insight into the experiences of South Asian patients of interacting with health care professionals while attending an early inflammatory arthritis clinic. Policy directives aimed at improving access to services and delivery of information for ethnic minority groups in early inflammatory arthritis clinics should include consideration of the different roles of cultures. Professionals should be cognizant of the factors that drive health inequalities and focus on improving service delivery.

Details

Original languageEnglish
Article numberrkz017
Pages (from-to)rkz017
JournalRheumatology Advances in Practice
Volume3
Issue number2
Publication statusPublished - 4 Jul 2019

Keywords

  • early inflammatory arthritis, ethnicity, illness representation, information, rheumatoid arthritis

ASJC Scopus subject areas