Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disability

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Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disability. / Fazil, Qulsoom; Wallace, L; Singh, G; Ali, Z; Bywaters, P.

In: Health and Social Care in the Community, Vol. 12, No. 5, 01.01.2004, p. 389-397.

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@article{5d3cea6e1d9b4ffeab2330613d7a1d4a,
title = "Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disability",
abstract = "The concepts of empowerment and advocacy, and how they impinge on power relationships for service providers working with black and Asian communities, are explored through the findings of a 20-month project carried out between 2000 and 2001 with 19 Pakistani and Bangladeshi families who have children with severe disabilities in Birmingham. This action research project evaluated an advocacy project designed to improve the quality of life for Pakistani and Bangladeshi families with at least one child with severe disabilities. The objectives included improving access to resources, services, information and support in ways which were non-stigmatising, and which were sensitive to the particular needs of the children and their carers. The present paper discusses four main themes: (1) advocacy and empowerment in practice; (2) issues of the efficacy of advocacy and of consultation within advocacy; (3) individual empowerment versus the families' needs; and (4) cultural and gender issues which emerged from the analysis of the study. The authors identify features of empowerment which must be addressed in advocacy services which are sensitive to ethnic differences. These issues must be addressed if services are to reap their potential to make a positive impact on the lives of the most vulnerable and powerless members of the community.",
keywords = "empowerment, user consultation, advocacy, South Asian, Pakistani, disability, ethnicity, Bangladeshi",
author = "Qulsoom Fazil and L Wallace and G Singh and Z Ali and P Bywaters",
year = "2004",
month = jan,
day = "1",
doi = "10.1111/j.1365-2524.2004.00508.x",
language = "English",
volume = "12",
pages = "389--397",
journal = "Health and Social Care in the Community",
issn = "0966-0410",
publisher = "Wiley",
number = "5",

}

RIS

TY - JOUR

T1 - Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disability

AU - Fazil, Qulsoom

AU - Wallace, L

AU - Singh, G

AU - Ali, Z

AU - Bywaters, P

PY - 2004/1/1

Y1 - 2004/1/1

N2 - The concepts of empowerment and advocacy, and how they impinge on power relationships for service providers working with black and Asian communities, are explored through the findings of a 20-month project carried out between 2000 and 2001 with 19 Pakistani and Bangladeshi families who have children with severe disabilities in Birmingham. This action research project evaluated an advocacy project designed to improve the quality of life for Pakistani and Bangladeshi families with at least one child with severe disabilities. The objectives included improving access to resources, services, information and support in ways which were non-stigmatising, and which were sensitive to the particular needs of the children and their carers. The present paper discusses four main themes: (1) advocacy and empowerment in practice; (2) issues of the efficacy of advocacy and of consultation within advocacy; (3) individual empowerment versus the families' needs; and (4) cultural and gender issues which emerged from the analysis of the study. The authors identify features of empowerment which must be addressed in advocacy services which are sensitive to ethnic differences. These issues must be addressed if services are to reap their potential to make a positive impact on the lives of the most vulnerable and powerless members of the community.

AB - The concepts of empowerment and advocacy, and how they impinge on power relationships for service providers working with black and Asian communities, are explored through the findings of a 20-month project carried out between 2000 and 2001 with 19 Pakistani and Bangladeshi families who have children with severe disabilities in Birmingham. This action research project evaluated an advocacy project designed to improve the quality of life for Pakistani and Bangladeshi families with at least one child with severe disabilities. The objectives included improving access to resources, services, information and support in ways which were non-stigmatising, and which were sensitive to the particular needs of the children and their carers. The present paper discusses four main themes: (1) advocacy and empowerment in practice; (2) issues of the efficacy of advocacy and of consultation within advocacy; (3) individual empowerment versus the families' needs; and (4) cultural and gender issues which emerged from the analysis of the study. The authors identify features of empowerment which must be addressed in advocacy services which are sensitive to ethnic differences. These issues must be addressed if services are to reap their potential to make a positive impact on the lives of the most vulnerable and powerless members of the community.

KW - empowerment

KW - user consultation

KW - advocacy

KW - South Asian

KW - Pakistani

KW - disability

KW - ethnicity

KW - Bangladeshi

UR - http://www.scopus.com/inward/record.url?scp=4444367906&partnerID=8YFLogxK

U2 - 10.1111/j.1365-2524.2004.00508.x

DO - 10.1111/j.1365-2524.2004.00508.x

M3 - Article

C2 - 15373817

VL - 12

SP - 389

EP - 397

JO - Health and Social Care in the Community

JF - Health and Social Care in the Community

SN - 0966-0410

IS - 5

ER -