Development and usability testing of an electronic patient-reported outcome measure (ePROM) system for patients with advanced chronic kidney disease

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@article{67fd66b118474201a2c2b3c3e68355f2,
title = "Development and usability testing of an electronic patient-reported outcome measure (ePROM) system for patients with advanced chronic kidney disease",
abstract = "BackgroundChronic kidney disease (CKD) is a long-term medical condition associated with symptoms which may negatively impact on patients' health-related quality of life (HRQOL). Patient-reported outcome (PRO) measures or questionnaires may be used to capture symptoms/HRQOL experienced by patients with advanced CKD.MethodTwo PRO questionnaires were electronically adapted and incorporated in an electronic system developed at University Hospitals Birmingham NHS Foundation Trust (UHB), Birmingham. Usability testing was conducted with patients with advanced CKD. Qualitative methodology was used to elicit participants' views.ResultsParticipants had a mean age of 64.3 years (range: 36–87 years). All owned electronic devices and had access to the internet. The mean time required to complete the two electronic questionnaires was 15.9 min (range = 8–34 min). Patients who had difficulties with the system were those who had the least experience of using the internet and electronic devices. The average usability and satisfaction score was 4.6 (5-point scale).ConclusionsOur study suggests that individuals with advanced CKD may find the Renal ePROM system acceptable and easy to use. The use of the Renal ePROM may complement clinician-reported outcomes and assist with the management of patients with advanced CKD.",
keywords = "Usability testing, User testing, eHealth, Electronic patient reported outcome measures, Electronic system, Chronic kidney disease, ePROM",
author = "Olalekan Aiyegbusi and Derek Kyte and Paul Cockwell and Tom Marshall and Mary Dutton and Natalie Walmsley-Allen and Ram Auti and Melanie Calvert",
year = "2018",
month = aug,
day = "16",
doi = "10.1016/j.compbiomed.2018.08.012",
language = "English",
journal = "Computers in biology and medicine",
issn = "0010-4825",
publisher = "Elsevier",

}

RIS

TY - JOUR

T1 - Development and usability testing of an electronic patient-reported outcome measure (ePROM) system for patients with advanced chronic kidney disease

AU - Aiyegbusi, Olalekan

AU - Kyte, Derek

AU - Cockwell, Paul

AU - Marshall, Tom

AU - Dutton, Mary

AU - Walmsley-Allen, Natalie

AU - Auti, Ram

AU - Calvert, Melanie

PY - 2018/8/16

Y1 - 2018/8/16

N2 - BackgroundChronic kidney disease (CKD) is a long-term medical condition associated with symptoms which may negatively impact on patients' health-related quality of life (HRQOL). Patient-reported outcome (PRO) measures or questionnaires may be used to capture symptoms/HRQOL experienced by patients with advanced CKD.MethodTwo PRO questionnaires were electronically adapted and incorporated in an electronic system developed at University Hospitals Birmingham NHS Foundation Trust (UHB), Birmingham. Usability testing was conducted with patients with advanced CKD. Qualitative methodology was used to elicit participants' views.ResultsParticipants had a mean age of 64.3 years (range: 36–87 years). All owned electronic devices and had access to the internet. The mean time required to complete the two electronic questionnaires was 15.9 min (range = 8–34 min). Patients who had difficulties with the system were those who had the least experience of using the internet and electronic devices. The average usability and satisfaction score was 4.6 (5-point scale).ConclusionsOur study suggests that individuals with advanced CKD may find the Renal ePROM system acceptable and easy to use. The use of the Renal ePROM may complement clinician-reported outcomes and assist with the management of patients with advanced CKD.

AB - BackgroundChronic kidney disease (CKD) is a long-term medical condition associated with symptoms which may negatively impact on patients' health-related quality of life (HRQOL). Patient-reported outcome (PRO) measures or questionnaires may be used to capture symptoms/HRQOL experienced by patients with advanced CKD.MethodTwo PRO questionnaires were electronically adapted and incorporated in an electronic system developed at University Hospitals Birmingham NHS Foundation Trust (UHB), Birmingham. Usability testing was conducted with patients with advanced CKD. Qualitative methodology was used to elicit participants' views.ResultsParticipants had a mean age of 64.3 years (range: 36–87 years). All owned electronic devices and had access to the internet. The mean time required to complete the two electronic questionnaires was 15.9 min (range = 8–34 min). Patients who had difficulties with the system were those who had the least experience of using the internet and electronic devices. The average usability and satisfaction score was 4.6 (5-point scale).ConclusionsOur study suggests that individuals with advanced CKD may find the Renal ePROM system acceptable and easy to use. The use of the Renal ePROM may complement clinician-reported outcomes and assist with the management of patients with advanced CKD.

KW - Usability testing

KW - User testing

KW - eHealth

KW - Electronic patient reported outcome measures

KW - Electronic system

KW - Chronic kidney disease

KW - ePROM

U2 - 10.1016/j.compbiomed.2018.08.012

DO - 10.1016/j.compbiomed.2018.08.012

M3 - Article

JO - Computers in biology and medicine

JF - Computers in biology and medicine

SN - 0010-4825

ER -