Cultural affordance, social relationships, and narratives of independence: Understanding the meaning of social care for adults with intellectual disabilities from minority ethnic groups in the UK

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@article{ba6f528a2da14cde830e7a38dd79170e,
title = "Cultural affordance, social relationships, and narratives of independence: Understanding the meaning of social care for adults with intellectual disabilities from minority ethnic groups in the UK",
abstract = "Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services. Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches. Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of ‘cultural affordance’ may be useful alternative to ‘cultural competence’. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery.",
keywords = "culture, ethnicity, independence, interviews, pluralist, relationships, social care",
author = "Michael Larkin and Gemma Unwin and Malvika Iyer and Ioanna Tsimopoulou and Sofia Zahid and Kulsoom Malik and {Stenfert Kroese}, Biza and Rose, {John L.}",
year = "2018",
month = "6",
day = "8",
doi = "10.1080/20473869.2018.1469807",
language = "English",
volume = "64",
pages = "195--203",
journal = "International Journal of Developmental Disabilities",
issn = "2047-3869",
publisher = "Maney Publishing",
number = "3",

}

RIS

TY - JOUR

T1 - Cultural affordance, social relationships, and narratives of independence

T2 - Understanding the meaning of social care for adults with intellectual disabilities from minority ethnic groups in the UK

AU - Larkin, Michael

AU - Unwin, Gemma

AU - Iyer, Malvika

AU - Tsimopoulou, Ioanna

AU - Zahid, Sofia

AU - Malik, Kulsoom

AU - Stenfert Kroese, Biza

AU - Rose, John L.

PY - 2018/6/8

Y1 - 2018/6/8

N2 - Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services. Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches. Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of ‘cultural affordance’ may be useful alternative to ‘cultural competence’. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery.

AB - Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services. Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches. Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of ‘cultural affordance’ may be useful alternative to ‘cultural competence’. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery.

KW - culture

KW - ethnicity

KW - independence

KW - interviews

KW - pluralist

KW - relationships

KW - social care

UR - http://www.scopus.com/inward/record.url?scp=85048281874&partnerID=8YFLogxK

U2 - 10.1080/20473869.2018.1469807

DO - 10.1080/20473869.2018.1469807

M3 - Article

AN - SCOPUS:85048281874

VL - 64

SP - 195

EP - 203

JO - International Journal of Developmental Disabilities

JF - International Journal of Developmental Disabilities

SN - 2047-3869

IS - 3

ER -