Challenges for children and adolescents with cancer in Europe: The SIOP-Europe agenda

Research output: Contribution to journalArticlepeer-review

Authors

  • Gilles Vassal
  • Edel Fitzgerald
  • Martin Schrappe
  • Frédéric Arnold
  • Jerzy Kowalczyk
  • David Walker
  • Lars Hjorth
  • Riccardo Riccardi
  • Anita Kienesberger
  • Kathy Pritchard Jones
  • Maria Grazia Valsecchi
  • Dragana Janic
  • Henrik Hasle
  • Giulia Petrarulo
  • Francesco Florindi
  • Samira Essiaf
  • Ruth Ladenstein

Colleges, School and Institutes

External organisations

  • University of Nottingham
  • University of Belgrade
  • Université Paris Sud
  • SIOP-Europe Office
  • University Medical Centre Schleswig-Holstein, Campus Kiel
  • Union Nationale des Associations de Parents d'Enfants atteints de Cancer ou Leucemie (Unapecle)
  • International Confederation of Childhood Cancer Parent Organizations (ICCPO)
  • Department of Paediatric Haematology, Oncology and Transplantology, Medical University
  • Lunds Universitet
  • Division of Paediatric Oncology, Policlinico Universitario A. Gemelli
  • University College London Hospitals NHS Foundation Trust
  • University of Milano-Bicocca
  • Aarhus University Hospital
  • Children's Cancer Research Institute, St. Anna Kinderkrebsforschung e.V., Children's Cancer Research Institute

Abstract

In Europe, 6,000 young people die of cancer yearly, the commonest disease causing death beyond the age of 1 year. In addition, 300,000-500,000 European citizens are survivors of a childhood cancer and up to 30% of them have severe long-term sequelae of their treatment. Increasing both cure and quality of cure are the two goals of the European paediatric haematology/oncology community. SIOPE coordinates and facilitates research, care and training which are implemented by the 18 European study groups and 23 national paediatric haematology/oncology societies. SIOPE is the European branch of the International Society of Paediatric Oncology and one of the six founding members of the European Cancer Organisation. SIOPE is preparing its strategic agenda to assure long-term sustainability of clinical and translational research in paediatric malignancies over the next 15 years. SIOPE tackles the issues of equal access to standard care and research across Europe and improvement of long term follow up. SIOPE defined a comprehensive syllabus for training European specialists. A strong partnership with parent, patient and survivor organisations is being developed to successfully achieve the goals of this patient-centred agenda. SIOPE is advocating in the field of EU policies, such as the Clinical Trials Regulation and the Paediatric Medicine Regulation, to warrant that the voice of young people is heard and their needs adequately addressed. SIOPE and the European community are entirely committed to the global agenda against childhood cancers to overcome the challenges to increasing both cure and quality of cure of young people with cancer. © 2014 Wiley-Liss, Inc., A Wiley Company. Pediatric Blood & Cancer published by Wiley Periodicals, Inc.

Details

Original languageEnglish
Pages (from-to)1551-1557
Number of pages7
JournalPediatric Blood & Cancer
Volume61
Issue number9
Early online date7 Apr 2014
Publication statusPublished - Sep 2014

Keywords

  • Cancer, Care, Education, Oncopolicy, Research

Sustainable Development Goals