Causal explanations, concern and optimism regarding self-injurious behaviour displayed by individuals with Cornelia de Lange Syndrome: The parents' perspective

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@article{b74217e5c8944e4db18d407b427aab9c,
title = "Causal explanations, concern and optimism regarding self-injurious behaviour displayed by individuals with Cornelia de Lange Syndrome: The parents' perspective",
abstract = "Research into behaviours associated with specific syndromes, such as Cornelia de Lange syndrome (CdLS), has neglected to explore the parents' perspective, particularly the potential impact of the notion of behavioural phenotypes on parents' causal explanations. Given the research focus on self-injurious behaviour (SIB) in CdLS, the present study examined parental concern across four topographies of challenging behaviour, causal explanations for these behaviours and optimism for change. As part of a larger study, a questionnaire survey of 86 parents of children and adults with CdLS was conducted. Quantitative data on parental concern and optimism with regard to behaviour problems were collected. Causal explanations for behaviour problems were examined by subjecting open-ended responses to a content analysis. Parents were as concerned about physical aggression and disruptive behaviours as they were about SIB. The majority of parents had deconstructed how CdLS might be associated with SIB in terms of other factors associated with CdLS, such as degree of intellectual disability. Parents did not believe that CdLS influenced SIB more than other challenging behaviours and their beliefs did not effect optimism regarding future change in the behaviour. Despite the focus of research on SIB in CdLS, parents of children and adults with CdLS are also concerned about other challenging behaviours. There was no evidence that a deterministic perspective had been adopted by parents and causal explanations were unrelated to optimism for future change.",
keywords = "parents, behavioural phenotype, Cornelia de Lange syndrome, self-injurious behaviour, attributions",
author = "P Hyman and Christopher Oliver",
year = "2001",
month = aug,
day = "1",
doi = "10.1046/j.1365-2788.2001.00325.x",
language = "English",
volume = "45",
pages = "326--334",
journal = "Journal of Intellectual Disability Research",
issn = "0964-2633",
publisher = "Wiley",

}

RIS

TY - JOUR

T1 - Causal explanations, concern and optimism regarding self-injurious behaviour displayed by individuals with Cornelia de Lange Syndrome: The parents' perspective

AU - Hyman, P

AU - Oliver, Christopher

PY - 2001/8/1

Y1 - 2001/8/1

N2 - Research into behaviours associated with specific syndromes, such as Cornelia de Lange syndrome (CdLS), has neglected to explore the parents' perspective, particularly the potential impact of the notion of behavioural phenotypes on parents' causal explanations. Given the research focus on self-injurious behaviour (SIB) in CdLS, the present study examined parental concern across four topographies of challenging behaviour, causal explanations for these behaviours and optimism for change. As part of a larger study, a questionnaire survey of 86 parents of children and adults with CdLS was conducted. Quantitative data on parental concern and optimism with regard to behaviour problems were collected. Causal explanations for behaviour problems were examined by subjecting open-ended responses to a content analysis. Parents were as concerned about physical aggression and disruptive behaviours as they were about SIB. The majority of parents had deconstructed how CdLS might be associated with SIB in terms of other factors associated with CdLS, such as degree of intellectual disability. Parents did not believe that CdLS influenced SIB more than other challenging behaviours and their beliefs did not effect optimism regarding future change in the behaviour. Despite the focus of research on SIB in CdLS, parents of children and adults with CdLS are also concerned about other challenging behaviours. There was no evidence that a deterministic perspective had been adopted by parents and causal explanations were unrelated to optimism for future change.

AB - Research into behaviours associated with specific syndromes, such as Cornelia de Lange syndrome (CdLS), has neglected to explore the parents' perspective, particularly the potential impact of the notion of behavioural phenotypes on parents' causal explanations. Given the research focus on self-injurious behaviour (SIB) in CdLS, the present study examined parental concern across four topographies of challenging behaviour, causal explanations for these behaviours and optimism for change. As part of a larger study, a questionnaire survey of 86 parents of children and adults with CdLS was conducted. Quantitative data on parental concern and optimism with regard to behaviour problems were collected. Causal explanations for behaviour problems were examined by subjecting open-ended responses to a content analysis. Parents were as concerned about physical aggression and disruptive behaviours as they were about SIB. The majority of parents had deconstructed how CdLS might be associated with SIB in terms of other factors associated with CdLS, such as degree of intellectual disability. Parents did not believe that CdLS influenced SIB more than other challenging behaviours and their beliefs did not effect optimism regarding future change in the behaviour. Despite the focus of research on SIB in CdLS, parents of children and adults with CdLS are also concerned about other challenging behaviours. There was no evidence that a deterministic perspective had been adopted by parents and causal explanations were unrelated to optimism for future change.

KW - parents

KW - behavioural phenotype

KW - Cornelia de Lange syndrome

KW - self-injurious behaviour

KW - attributions

UR - http://www.scopus.com/inward/record.url?scp=0034896974&partnerID=8YFLogxK

U2 - 10.1046/j.1365-2788.2001.00325.x

DO - 10.1046/j.1365-2788.2001.00325.x

M3 - Article

C2 - 11489054

VL - 45

SP - 326

EP - 334

JO - Journal of Intellectual Disability Research

JF - Journal of Intellectual Disability Research

SN - 0964-2633

ER -