Associations between behaviours that challenge in adults with intellectual disability, parental perceptions and parental mental health

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@article{ddc60d83452a4392994bc3608b5b15ee,
title = "Associations between behaviours that challenge in adults with intellectual disability, parental perceptions and parental mental health",
abstract = "OBJECTIVES: This study examined parental perceptions of behaviours that challenge (CB) in their adult children with intellectual disability (ID), and explored whether perceptions mediated associations between CB and parental psychological distress.DESIGN: A within-group correlational design was employed.METHODS: Sixty-five parents reported on individuals with genetic syndromes and ID who had chronic CB. Parents completed the Illness Perception Questionnaire-Revised (IPQ-R) adapted to measure perceptions of self-injury, aggression or property destruction, alongside assessments of parental locus of control, attributions about behaviour, parental psychological distress, and CB.RESULTS: A high proportion of parents evidenced anxiety and depression at clinically significant levels (56.9{\%} and 30.8{\%}, respectively). Contrary to predictions, psychological distress was not significantly associated with CB. The perception that the adult with ID exerted control over the parent's life mediated the association between CB and parental psychological distress. Few parents endorsed operant reinforcement as a cause of CB (< 10{\%}).CONCLUSIONS: The high levels of psychological distress in parents is notable and of concern. Further research should consider the reasons why parents have causal attributions that might be inconsistent with contemporary interventions.PRACTITIONER POINTS: Parents experience high levels of psychological distress while supporting adults with ID who engage in chronic behaviours that challenge. A stronger belief that the adult with ID exerts control over the parent's life may mediate an association between CB exhibited by the individual with ID and parental psychological distress. Few parents endorsed operant reinforcement as a cause of behaviours that challenge.",
keywords = "adults , attributions , challenging behaviour , intellectual disability , parents , self-regulatory model",
author = "Jane Waite and John Rose and Lucy Wilde and Kate Eden and Chris Stinton and Jo Moss and Chris Oliver",
note = "{\circledC} 2017 The British Psychological Society.",
year = "2017",
month = "11",
day = "1",
doi = "10.1111/bjc.12146",
language = "English",
volume = "56",
pages = "408--430",
journal = "British Journal of Clinical Psychology",
issn = "0144-6657",
publisher = "Wiley",
number = "4",

}

RIS

TY - JOUR

T1 - Associations between behaviours that challenge in adults with intellectual disability, parental perceptions and parental mental health

AU - Waite, Jane

AU - Rose, John

AU - Wilde, Lucy

AU - Eden, Kate

AU - Stinton, Chris

AU - Moss, Jo

AU - Oliver, Chris

N1 - © 2017 The British Psychological Society.

PY - 2017/11/1

Y1 - 2017/11/1

N2 - OBJECTIVES: This study examined parental perceptions of behaviours that challenge (CB) in their adult children with intellectual disability (ID), and explored whether perceptions mediated associations between CB and parental psychological distress.DESIGN: A within-group correlational design was employed.METHODS: Sixty-five parents reported on individuals with genetic syndromes and ID who had chronic CB. Parents completed the Illness Perception Questionnaire-Revised (IPQ-R) adapted to measure perceptions of self-injury, aggression or property destruction, alongside assessments of parental locus of control, attributions about behaviour, parental psychological distress, and CB.RESULTS: A high proportion of parents evidenced anxiety and depression at clinically significant levels (56.9% and 30.8%, respectively). Contrary to predictions, psychological distress was not significantly associated with CB. The perception that the adult with ID exerted control over the parent's life mediated the association between CB and parental psychological distress. Few parents endorsed operant reinforcement as a cause of CB (< 10%).CONCLUSIONS: The high levels of psychological distress in parents is notable and of concern. Further research should consider the reasons why parents have causal attributions that might be inconsistent with contemporary interventions.PRACTITIONER POINTS: Parents experience high levels of psychological distress while supporting adults with ID who engage in chronic behaviours that challenge. A stronger belief that the adult with ID exerts control over the parent's life may mediate an association between CB exhibited by the individual with ID and parental psychological distress. Few parents endorsed operant reinforcement as a cause of behaviours that challenge.

AB - OBJECTIVES: This study examined parental perceptions of behaviours that challenge (CB) in their adult children with intellectual disability (ID), and explored whether perceptions mediated associations between CB and parental psychological distress.DESIGN: A within-group correlational design was employed.METHODS: Sixty-five parents reported on individuals with genetic syndromes and ID who had chronic CB. Parents completed the Illness Perception Questionnaire-Revised (IPQ-R) adapted to measure perceptions of self-injury, aggression or property destruction, alongside assessments of parental locus of control, attributions about behaviour, parental psychological distress, and CB.RESULTS: A high proportion of parents evidenced anxiety and depression at clinically significant levels (56.9% and 30.8%, respectively). Contrary to predictions, psychological distress was not significantly associated with CB. The perception that the adult with ID exerted control over the parent's life mediated the association between CB and parental psychological distress. Few parents endorsed operant reinforcement as a cause of CB (< 10%).CONCLUSIONS: The high levels of psychological distress in parents is notable and of concern. Further research should consider the reasons why parents have causal attributions that might be inconsistent with contemporary interventions.PRACTITIONER POINTS: Parents experience high levels of psychological distress while supporting adults with ID who engage in chronic behaviours that challenge. A stronger belief that the adult with ID exerts control over the parent's life may mediate an association between CB exhibited by the individual with ID and parental psychological distress. Few parents endorsed operant reinforcement as a cause of behaviours that challenge.

KW - adults

KW - attributions

KW - challenging behaviour

KW - intellectual disability

KW - parents

KW - self-regulatory model

U2 - 10.1111/bjc.12146

DO - 10.1111/bjc.12146

M3 - Article

C2 - 28801992

VL - 56

SP - 408

EP - 430

JO - British Journal of Clinical Psychology

JF - British Journal of Clinical Psychology

SN - 0144-6657

IS - 4

ER -