Joanna Moss

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Publications

  1. 2020
  2. Published

    The behaviour and wellbeing of children and adults with severe intellectual disability and complex needs: the Be-Well checklist for carers and professionals

    Chris Oliver, Dawn Adams, Debbie Allen, Mary Heald, Joanna Moss, Caroline Richards, Alice Welham, Lucy Wilde & Kate Woodcock, 13 Oct 2020, In: Paediatrics and Child Health.

    Research output: Contribution to journal › Article › peer-review

  3. Published

    Persistence and predictors of self-injurious behaviour in autism: a ten-year prospective cohort study

    Chris Oliver, Joanna Moss & Caroline Richards, 20 Jan 2020, In: Molecular Autism. 11, 8.

    Research output: Contribution to journal › Article › peer-review

  4. Accepted/In press

    The behaviour and wellbeing of children and adults with severe intellectual disability and complex needs: the Be-Well checklist for carers and professionals

    Chris Oliver, Dawn Adams, Debbie Allen, Mary Heald, Joanna Moss, Caroline Richards, Jane Waite, Lucy Wilde & Kate Woodcock, 2020, (Accepted/In press) In: Paediatrics and Child Health (United Kingdom).

    Research output: Contribution to journal › Review article › peer-review

  5. 2019
  6. E-pub ahead of print

    The Profiles and Correlates of Psychopathology in Adolescents and Adults with Williams, Fragile X and Prader–Willi Syndromes

    Chris Oliver, Joanna Moss & Jane Waite, 4 Dec 2019, In: Journal of Autism and Developmental Disorders. p. 1-11

    Research output: Contribution to journal › Article › peer-review

  7. E-pub ahead of print

    Prevalence and Risk-Markers of Self-Harm in Autistic Children and Adults

    Chris Oliver, Joanna Moss & Caroline Richards, 26 Oct 2019, In: Journal of Autism and Developmental Disorders. p. 1-14

    Research output: Contribution to journal › Article › peer-review

  8. Published

    Lifespan trajectory of affect in Cornelia de Lange syndrome: towards a neurobiological hypothesis

    Laura Groves, Joanna Moss, Chris Stinton & Chris Oliver, 7 Jun 2019, In: Journal of Neurodevelopmental Disorders. 11, 1, 6.

    Research output: Contribution to journal › Article › peer-review

  9. Published

    Correction to: Age-related Behavioural Change in Cornelia de Lange and Cri du Chat Syndromes: A Seven Year Follow-up Study

    Chris Oliver & Joanna Moss, 1 Jun 2019, In: Journal of Autism and Developmental Disorders. 49, 6, p. 2488-2491 4 p.

    Research output: Contribution to journal › Article › peer-review

  10. Published

    Age-related Behavioural Change in Cornelia de Lange and Cri du Chat Syndromes: A Seven Year Follow-up Study

    Alice Welham, Chris Oliver & Joanna Moss, Jun 2019, In: Journal of Autism and Developmental Disorders. 49, 6, p. 2476-2487 12 p.

    Research output: Contribution to journal › Article › peer-review

  11. 2018
  12. Published

    Development, behaviour and autism in individuals with SMC1A variants

    Joanna Moss & Chris Oliver, 8 Oct 2018, In: Journal of Child Psychology and Psychiatry and Allied Disciplines.

    Research output: Contribution to journal › Article › peer-review

  13. E-pub ahead of print

    Diagnosis and management of Cornelia de Lange syndrome: first international consensus statement

    Joanna Moss & 23 others, , Chris Oliver, 11 Jul 2018, In: Nature Reviews Genetics.

    Research output: Contribution to journal › Review article › peer-review

  14. E-pub ahead of print

    Overactivity, impulsivity and repetitive behaviour in males with fragile X syndrome: contrasting developmental trajectories in those with and without elevated autism symptoms

    Joanna Moss, Chris Stinton & Chris Oliver, 3 May 2018, In: Journal of Intellectual Disability Research.

    Research output: Contribution to journal › Article › peer-review

  15. Published

    Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior: A Cross-Sectional and Longitudinal Study

    Dawn Adams, Joanna Moss, Jane Petty & Chris Oliver, 1 May 2018, In: American Journal on Intellectual and Developmental Disabilities. 123, 3, p. 241-253 13 p.

    Research output: Contribution to journal › Article › peer-review

  16. E-pub ahead of print

    Attenuated behaviour in Cornelia de Lange and fragile X syndromes

    Chris Oliver, Joanna Moss, 13 Mar 2018, In: Journal of Intellectual Disability Research.

    Research output: Contribution to journal › Article › peer-review

  17. Published

    The behavioural phenotype of Potocki-Lupski syndrome: a cross-syndrome comparison

    Stacey Bissell, Lucy Wilde, Caroline Richards, Joanna Moss & Chris Oliver, 10 Jan 2018, In: Journal of Neurodevelopmental Disorders. 10, 1, 2.

    Research output: Contribution to journal › Article › peer-review

  18. 2017
  19. Published

    Prospective Study of Autism Phenomenology and the Behavioural Phenotype of Phelan-McDermid Syndrome: Comparison to fragile X syndrome, Down syndrome and Idiopathic Autism Spectrum Disorder

    Caroline Richards, Joanna Moss, Chris Stinton & Chris Oliver, 10 Nov 2017, In: Journal of Neurodevelopmental Disorders. 9, 37

    Research output: Contribution to journal › Article › peer-review

  20. Published

    Brief Report: Repetitive Behaviour Profiles in Williams syndrome: Cross Syndrome Comparisons with Prader-Willi and Down syndromes

    Joanna Moss, Katy Berg, Chris Stinton & Jane Waite, 4 Oct 2017, In: Journal of Autism and Developmental Disorders.

    Research output: Contribution to journal › Article › peer-review

  21. Published

    Differential effects of anxiety and autism on social scene scanning in males with fragile X syndrome

    Joanna Moss, Chris Oliver, 25 Sep 2017, In: Journal of Neurodevelopmental Disorders. 9, 9.

    Research output: Contribution to journal › Article › peer-review

  22. Published

    An experimental study of executive function and social impairment in Cornelia de Lange syndrome

    Joanna Moss & Chris Oliver, 11 Sep 2017, In: Journal of Neurodevelopmental Disorders. 9, 33

    Research output: Contribution to journal › Article › peer-review

  23. Published

    Self-injury and aggression in adults with tuberous sclerosis complex: frequency, associated person characteristics, and implications for assessment

    Lucy Wilde, Kate Eden, Joanna Moss, Alice Welham & Chris Oliver, 1 May 2017, In: Research in Developmental Disabilities. p. 119-130

    Research output: Contribution to journal › Article › peer-review

  24. E-pub ahead of print

    Genotype-phenotype correlations in Cornelia de Lange syndrome: Behavioral characteristics and changes with age

    Joanna Moss & Chris Oliver, 19 Apr 2017, In: American Journal of Medical Genetics. Part A.

    Research output: Contribution to journal › Article › peer-review

  25. 2016
  26. Published

    A Comparative Study of Sociability in Angelman, Cornelia de Lange, Fragile X, Down and Rubinstein Taybi Syndromes and Autism Spectrum Disorder

    Joanna Moss, Jane Waite, Caroline Richards & Chris Oliver, Nov 2016, In: American Journal on Intellectual and Developmental Disabilities. 121, 6, p. 465-486 22 p.

    Research output: Contribution to journal › Article › peer-review

  27. E-pub ahead of print

    Autism spectrum disorder and attention-deficit–hyperactivity disorder in Down syndrome

    Joanna Moss, 3 Sep 2016, In: Developmental Medicine and Child Neurology.

    Research output: Contribution to journal › Book/Film/Article review › peer-review

  28. Published

    Persistence of self-injurious behaviour in autism spectrum disorder over 3 years: a prospective cohort study of risk markers

    Caroline Richards, Joanna Moss & Chris Oliver, 5 May 2016, In: Journal of Neurodevelopmental Disorders. 8, 21.

    Research output: Contribution to journal › Article › peer-review

  29. Published

    Visual preference for social stimuli in individuals with autism or neurodevelopmental disorders: an eye-tracking study

    Joanna Moss, Chris Oliver, Giles Anderson & Joe McCleery, 5 Apr 2016, In: Molecular Autism. 7, 24, 24.

    Research output: Contribution to journal › Article › peer-review

  30. 2015
  31. Published

    The behavioral characteristics of Sotos syndrome

    Krupa Sheth, Joanna Moss, Chris Stinton & Chris Oliver, Dec 2015, In: American Journal of Medical Genetics. Part A. 167, 12, p. 2945-2956 12 p.

    Research output: Contribution to journal › Article › peer-review

  32. Published

    Behavioral characteristics associated with 19p13.2 microdeletions

    Alice Welham, Joanna Moss, Krupa Sheth, Lucy Wilde & Chris Oliver, 1 Oct 2015, In: American Journal of Medical Genetics. Part A. 167, 10, p. 2334-2343 10 p.

    Research output: Contribution to journal › Article › peer-review

  33. Published

    Prevalence of autism spectrum disorder phenomenology in genetic disorders: a systematic review and meta-analysis

    Caroline Richards, Christopher Jones, Joanna Moss & Chris Oliver, Oct 2015, In: The Lancet Psychiatry. 2, 10, p. 909–916

    Research output: Contribution to journal › Article › peer-review

  34. Published

    Face scanning and spontaneous emotion preference in Cornelia de Lange syndrome and Rubinstein-Taybi syndrome

    Joanna Moss & Chris Oliver, 30 Jul 2015, In: Journal of Neurodevelopmental Disorders. 7, 1, 22.

    Research output: Contribution to journal › Article › peer-review

  35. Published

    Implicit discrimination of basic facial expressions of positive/negative emotion in fragile x syndrome and autism spectrum disorder

    Joanna Moss, Giles Anderson, Chris Oliver, Jul 2015, In: American Journal on Intellectual and Developmental Disabilities. 120, 4, p. 328-345 18 p.

    Research output: Contribution to journal › Article › peer-review

  36. Published

    Repetitive behavior in rubinstein-taybi syndrome: parallels with autism spectrum phenomenology

    Jane Waite, Joanna Moss, Caroline Richards, Kate Arron & Chris Oliver, May 2015, In: Journal of Autism and Developmental Disorders. 45, 5, p. 1238-1253 16 p.

    Research output: Contribution to journal › Article › peer-review

  37. Published

    Are Angelman and Prader-Willi syndromes more similar than we thought? Food-related behavior problems in Angelman, Cornelia de Lange, Fragile X, Prader-Willi and 1p36 deletion syndromes

    Alice Welham, Johnny Lau, Joanna Moss, Suzanne Higgs, Gemma Warren, Lucy Wilde & Chris Oliver, Mar 2015, In: American Journal of Medical Genetics Part A. 167, 3, p. 572-578 7 p.

    Research output: Contribution to journal › Article › peer-review

  38. Published

    Contrasting age related changes in autism spectrum disorder phenomenology in Cornelia de Lange, Fragile X, and Cri du Chat syndromes: Results from a 2.5 year follow-up

    Joanna Moss & Chris Oliver, 2015, In: American Journal of Medical Genetics. Part C: Seminars in Medical Genetics. 169, 2, p. 188-197 10 p.

    Research output: Contribution to journal › Article › peer-review

  39. 2013
  40. Published

    Prevalence of autism spectrum disorder symptomatology and related behavioural characteristics in individuals with Down syndrome

    Joanna Moss, Caroline Richards & Chris Oliver, Jul 2013, In: Autism: the international journal of research and practice. 17, 4, p. 390-404 15 p.

    Research output: Contribution to journal › Article › peer-review

  41. Published

    Social behavior and characteristics of autism spectrum disorder in Angelman, Cornelia de Lange, and Cri du Chat syndromes

    Joanna Moss, Jane Petty, Darrelle Villa & Chris Oliver, Jul 2013, In: American Journal on Intellectual and Developmental Disabilities. 118, 4, p. 262-283 22 p.

    Research output: Contribution to journal › Article › peer-review

  42. Published

    Delineating the profile of autism spectrum disorder characteristics in Cornelia de Lange and fragile x syndromes: American Journal on Intellectual and Developmental Disabilities

    Joanna Moss, Chris Oliver, Caroline Richards, Jan 2013, In: American Journal on Intellectual and Developmental Disabilities. 118, 1, p. 55-73 19 p.

    Research output: Contribution to journal › Article › peer-review

  43. Published

    Causal Models of Clinically Significant Behaviors in Angelman, Cornelia de Lange, Prader-Willi and Smith-Magenis Syndromes

    Chris Oliver, Dawn Adams, Debbie Allen, Leah Bull, Mary Heald, Joanna Moss, Lucy Wilde & Kate Woodcock, 2013, International Review of Research in Developmental Disabilities: Challenging Behavior. Hastings, R. & Rojahn, J. (eds.). Academic Press (Elsevier), Vol. 44. p. 167-211 45 p. (International Review of Research in Developmental Disabilities; vol. 44).

    Research output: Chapter in Book/Report/Conference proceeding › Chapter (peer-reviewed) › peer-review

  44. 2012
  45. Published

    Self-injurious behaviour in individuals with autism spectrum disorder and intellectual disability

    Caroline Richards, Chris Oliver & Joanna Moss, May 2012, In: Journal of Intellectual Disability Research. 56, 5, p. 476–489

    Research output: Contribution to journal › Article

  46. Published

    Characteristics of autism spectrum disorder in Cornelia de Lange syndrome.

    Joanna Moss & Chris Oliver, 10 Apr 2012, In: Journal of Child Psychology and Psychiatry. 53, p. 882-891

    Research output: Contribution to journal › Article › peer-review

  47. 2011
  48. Published

    The assessment and presentation of Autism Spectrum Disorder and associated characteristics in individuals with severe intellectual disability and genetic syndromes

    Joanna Moss & Chris Oliver, 1 Sep 2011, The Oxford Handbook of Intellectual Disability and Development.. Burack, J., Hodapp, R., Iarocci, G. & Zigler, E. (eds.). Oxford University Press, (Oxford Library of Psychology).

    Research output: Chapter in Book/Report/Conference proceeding › Other chapter contribution

  49. Published

    Delineation of Behavioral Phenotypes in Genetic Syndromes: Characteristics of Autism Spectrum Disorder, Affect and Hyperactivity

    Chris Oliver, Katy Berg, Joanna Moss, Kate Arron, Aug 2011, In: Journal of Autism and Developmental Disorders. 41, 8, p. 1019-1032 14 p.

    Research output: Contribution to journal › Article › peer-review

  50. Published

    Successful School Change and Transition for the Child with Asperger Syndrome: A Guide for Parents

    Joanna Moss, 1 May 2011, In: Journal of Applied Research in Intellectual Disabilities. 24, 3, p. 290-290 1 p.

    Research output: Contribution to journal › Book/Film/Article review

  51. Published

    Psychological well-being in parents of children with Angelman, Cornelia de Lange and Cri du Chat syndromes.

    Chris Oliver, Joanna Moss, Jane Petty, 1 Apr 2011, In: Journal of Intellectual Disability Research. 55, 4, p. 397-410 14 p.

    Research output: Contribution to journal › Article

  52. Published

    The prevalence and phenomenology of self-injurious and aggressive behaviour in genetic syndromes.

    Chris Oliver, Joanna Moss, 1 Feb 2011, In: Journal of Intellectual Disability Research. 55, 2, p. 109-20 12 p.

    Research output: Contribution to journal › Article

  53. Published

    Further refinement of the nature of the communication impairment in Cornelia de Lange syndrome: Advances in Mental Health and Intellectual Disabilities

    Joanna Moss, Kate Woodcock & Chris Oliver, 2011, In: Advances in Mental Health and Intellectual Disabilities. 5, 4, p. 15-25 11 p.

    Research output: Contribution to journal › Article › peer-review

  54. 2010
  55. Published

    The association between repetitive behaviours, impulsivity and hyperactivity in people with intellectual disability.

    Chris Oliver, Joanna Moss, Kate Woodcock, 1 Dec 2010, In: Journal of Intellectual Disability Research. 54, 12, p. 1078-92 15 p.

    Research output: Contribution to journal › Article › peer-review

  56. Published

    Cornelia de Lange syndrome: extending the physical and psychological phenotype.

    Chris Oliver, Joanna Moss, 1 May 2010, In: American Journal of Medical Genetics Part A. 152A, 5, p. 1127-35 9 p.

    Research output: Contribution to journal › Article

  57. 2009
  58. Published

    Social Anxiety in Cornelia de Lange Syndrome

    Caroline Richards, Joanna Moss & Chris Oliver, Aug 2009, In: Journal of Autism and Developmental Disorders. 39, 8, p. 1155-1162

    Research output: Contribution to journal › Article › peer-review

  59. Published

    Autism spectrum disorders in genetic syndromes: Implications for diagnosis, intervention and understanding the wider ASD population

    Joanna Moss, 1 Jan 2009, In: Journal of Intellectual Disability Research. 53, p. 852-872 21 p.

    Research output: Contribution to journal › Article

  60. Published

    Extending the behavioral phenotype of Cornelia de Lange syndrome

    Chris Oliver, Joanna Moss, Kate Arron & Sarah Gorniak, 1 Jan 2009, p. 1622. 1 p.

    Research output: Contribution to conference (unpublished) › Abstract

  61. Published

    Impaired and preserved sociability, social interaction skills and stranger discrimination in Cornelia de Lange, Angelman and Cri du Chat syndromes

    Joanna Moss, Jane Petty & Chris Oliver, 1 Jan 2009, p. 835. 1 p.

    Research output: Contribution to conference (unpublished) › Abstract

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