Unequal treatment: health care experiences and needs of patients with cancer from minority ethnic communities

Qulsom Fazil, Navneet Aujla, Catherine Hale, Joe Kai

Research output: Contribution to journalArticlepeer-review

187 Downloads (Pure)

Abstract

This study aimed to explore the health care experiences of members of minority ethnic groups regarding the patients with cancer. A grounded theory approach and semi-structured interviews were conducted with a purposeful sample of 50
respondents who represented the largest minority ethnic groups in a metropolitan UK city. These included 35 patients with cancer from African-Caribbean, Irish, Pakistani, Indian, Bangladeshi and Chinese communities, eight of their carers; and seven community bilingual advocates involved in supporting members of minority ethnic groups who had cancer. Respondents’ experiences of health care were highly variable. Some patients had positive experiences of certain aspects of care, including emotional support from advocates. However, the basic needs of many patients were commonly not met. Effective access to appropriate care, information and communication was compromised, including at critical times such as when imparting a cancer diagnosis or discussing treatment options. Continuing care was characterised by a lack of service responsiveness and flexibility across care pathways and social services, with patients often unaware of their entitlement to support related to their cancer. The study provided continuing evidence of institutional racism and inequality in patients’ experience of health care. Service providers and policy makers should focus on improving elementary quality of care for all as a matter of urgency.
Original languageEnglish
Pages (from-to)95-103
JournalDiversity and Equality in Health and Care
Volume12
Issue number3
Publication statusPublished - 23 Nov 2015

Keywords

  • Cancer
  • Ethnic Minorities
  • Advocacy
  • Service Provision
  • Communication Introduction

Fingerprint

Dive into the research topics of 'Unequal treatment: health care experiences and needs of patients with cancer from minority ethnic communities'. Together they form a unique fingerprint.

Cite this