Understanding the impact of Systemic Lupus Erythematosus on work amongst South Asian people in the UK: an explorative qualitative study

Mandeep Ubhi, Shirish Dubey, Caroline Gordon, Tochukwu Adizie, Tom Sheeran, Kerry Allen, Rachel Jordan, Steven Sadhra, Jo Adams, Rashmika Daji, John Reynolds, Kanta Kumar

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SLE has a range of fluctuating symptoms affecting individuals and their ability to work. Although South Asian (SA) patients are at increased risk of developing SLE there is limited knowledge of the impact on employment for these patients in the UK. Understanding ethnicity and disease-specific issues are important to ensure patients are adequately supported at work. Semi-structured interviews were conducted with patients of SA origin to explore how SLE impacted on their employment. Thematic analysis was used to analyse the data which are reported following COREQ guidelines. Ten patients (8 female; 2 male) were recruited from three rheumatology centres in the UK and interviewed between November 2019 and March 2020. Patients were from Indian (n = 8) or Pakistani (n = 2) origin and worked in a range of employment sectors. Four themes emerged from the data: (1) Disease related factors; (2) Employment related factors; (3) Cultural and interpersonal factors impacting on work ability; (4) Recommendations for improvement. Patients’ ability to work was affected by variable work-related support from their hospital clinicians, low awareness of SLE and variable support from their employers, and cultural barriers in their communities that could affect levels of family support received. These findings highlight the need for additional support for SA patients with SLE in the workplace.
Original languageEnglish
Pages (from-to)1492-1501
Number of pages10
Issue number9
Early online date6 Jun 2021
Publication statusE-pub ahead of print - 6 Jun 2021

Bibliographical note

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: this work was funded by Lupus UK on an academic grant (1000018).

Publisher Copyright:
© The Author(s) 2021.


  • South Asian
  • Systemic lupus erythematosus
  • employment
  • ethnicity
  • lupus

ASJC Scopus subject areas

  • Rheumatology


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