The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period

Gemma Rogers; Gisela Perez-Olivas; Biza Stenfert Kroese; Varsha Patel; Glynis Murphy; John Rose; Vivien Cooper; Peter Langdon; Steve Hiles; Clair Clifford; Paul Willner

doi:10.1111/jar.12884

The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period

Gemma Rogers^*, Gisela Perez-Olivas, Biza Stenfert Kroese, Varsha Patel, Glynis Murphy, John Rose, Vivien Cooper, Peter Langdon, Steve Hiles, Clair Clifford, Paul Willner

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

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Abstract

Background: Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.

Aim: The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period. Methods: Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.

Results: Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.

Conclusions: All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.

Original language	English
Pages (from-to)	1421-1430
Number of pages	10
Journal	Journal of Applied Research in Intellectual Disabilities
Volume	34
Issue number	6
Early online date	23 Mar 2021
DOIs	https://doi.org/10.1111/jar.12884
Publication status	Published - Nov 2021

Keywords

caring responsibility
children
Covid-19
intellectual disabilities
mothers
young people

ASJC Scopus subject areas

Education
Developmental and Educational Psychology

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Cite this

Rogers, G., Perez-Olivas, G., Stenfert Kroese, B., Patel, V., Murphy, G., Rose, J., Cooper, V., Langdon, P., Hiles, S., Clifford, C., & Willner, P. (2021). The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period. Journal of Applied Research in Intellectual Disabilities, 34(6), 1421-1430. https://doi.org/10.1111/jar.12884

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title = "The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period",

abstract = "Background: Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.Aim: The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period. Methods: Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis. Results: Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future. Conclusions: All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.",

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Rogers, G, Perez-Olivas, G, Stenfert Kroese, B, Patel, V, Murphy, G, Rose, J, Cooper, V, Langdon, P, Hiles, S, Clifford, C & Willner, P 2021, 'The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period', Journal of Applied Research in Intellectual Disabilities, vol. 34, no. 6, pp. 1421-1430. https://doi.org/10.1111/jar.12884

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T1 - The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period

AU - Rogers, Gemma

AU - Perez-Olivas, Gisela

AU - Stenfert Kroese, Biza

AU - Patel, Varsha

AU - Murphy, Glynis

AU - Rose, John

AU - Cooper, Vivien

AU - Langdon, Peter

AU - Hiles, Steve

AU - Clifford, Clair

AU - Willner, Paul

PY - 2021/11

Y1 - 2021/11

N2 - Background: Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.Aim: The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period. Methods: Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis. Results: Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future. Conclusions: All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.

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The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period

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Keywords

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