Abstract
Some partners of people with an acquired brain injury experience the person with the injury and their relationship as continuous with the pre-injury person and relationship, but others experience the person and relationship as very different to what went before. Previous qualitative research has suggested that the experience of continuity may promote a more person-centred approach to how partners respond to challenging care needs. Given the value of triangulating evidence, this exploratory study used a mixed-methods design to investigate this suggestion. Twenty-six partners of people with an acquired brain injury completed the Birmingham Relationship Continuity Measure and a semi-structured interview about their response to challenging care needs. Interviews were coded and scored to provide a measure of the extent to which the participants' understanding, management and emotional responses showed a person-centred approach. The findings supported the hypothesis. Greater continuity was significantly correlated with a more person-centred approach. Associating relationship continuity and person-centred care is a novel approach to the issue of how family relationships may impact on care quality. Person-centred care can have important benefits for both the giver and receiver of care. Whether it can be promoted through fostering a sense of continuity in the relationship merits further investigation.
Original language | English |
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Pages (from-to) | 1169–1189 |
Number of pages | 21 |
Journal | Neuropsychological Rehabilitation |
Volume | 30 |
Issue number | 6 |
Early online date | 15 Jan 2019 |
DOIs | |
Publication status | Published - 2 Jul 2020 |
Keywords
- brain injury
- family care
- relationship continuity
- person-centred care
- challenging behaviour