Relationship Continuity and Emotional Well-Being in Spouses of People with Dementia

Gerard Riley*, Laura Evans, Janet Oyebode

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

17 Citations (Scopus)
406 Downloads (Pure)

Abstract

Objectives: Qualitative research has suggested that spousal experiences of discontinuity in their relationship with a person who has dementia (i.e. the relationship is experienced as radically changed) may contribute to heightened feelings of burden, entrapment, isolation, guilt and intolerance of behaviours that challenge. By contrast, continuity in the relationship may contribute to a greater sense of achievement and gratification from providing care. The present study served as a quantitative test of these suggestions.

Method: A convenience sample of 71 spouses of people with dementia completed three questionnaires - the Zarit Burden Interview (ZBI), the Positive Aspects of Caregiving measure (PAC) and the Birmingham Relationship Continuity Measure (BRCM).

Results: In accordance with the hypotheses, the experience of greater relationship continuity (higher BRCM scores) was correlated with fewer negative emotional reactions to caregiving (lower ZBI scores; rho = −.795) and more positive emotional reactions (higher PAC scores; rho = .764).

Conclusions: The study provided some quantitative support for suggestions arising from qualitative research about how perceptions of continuity/discontinuity in the relationship may impact on the caregiving spouse's emotional well-being. Helping couples to maintain a sense of continuity and couplehood may assist their emotional adjustment to dementia.
Original languageEnglish
Pages (from-to)299-305
Number of pages7
JournalAging & Mental Health
Volume22
Issue number3
Early online date3 Nov 2016
DOIs
Publication statusPublished - 4 Mar 2018

Keywords

  • Dementia
  • spouses
  • burden
  • positive aspects of care-giving
  • well-being
  • couplehood
  • relationship continuity

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