Psychological wellbeing in parents of children with Down syndrome: A systematic review and meta-analysis

T. L. Rutter*, Richard Hastings, C. A. Murray, N. Enoch, S. Johnson, C. Stinton

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

Abstract

We report a review examining the psychological wellbeing of parents of children with Down syndrome (DS) relative to that of parents of typically developing (TD) children. A systematic search identified 57 relevant studies, which were synthesised meta-analytically. Relative to their counterparts with TD children, mothers and fathers of children with DS reported higher levels of parenting stress (mothers: g = 0.57, 95% CI [0.33, 0.81]; fathers: g = 0.40, [0.24, 0.56]), depressive symptoms (mothers: g = 0.42, [0.23, 0.61]; fathers: g = 0.25, [0.02, 0.48]) and psychological distress (mothers: g = 0.45, [0.30, 0.60]; fathers: g = 0.63, [0.26, 0.99]). Small effects were found for anxiety for mothers (g = 0.16, [0.03, 0.29]), with no differences for fathers (g = 0.03, [−0.25, 0.32]). No group differences were found for positive impact of parenting (mothers: g = −0.09, [−0.25, 0.07]; fathers: g = −0.04, [−0.30, 0.22]), while evidence concerning other positive wellbeing outcomes was limited. No significant moderating effects of child age range, country income level, or group differences in parental education level were identified, but limited subgroup analyses were possible. Raising a child with DS may be associated with elevated stress, depressive symptoms, and psychological distress for mothers and fathers. However, levels of parenting reward appear equivalent to those experienced by parents raising TD children.

Original languageEnglish
Article number102426
Number of pages16
JournalClinical Psychology Review
Volume110
Early online date6 Apr 2024
DOIs
Publication statusPublished - Jun 2024

Bibliographical note

Publisher Copyright:
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Keywords

  • Depressive symptoms
  • Down syndrome
  • Parenting reward
  • Parenting stress
  • Parents
  • Psychological wellbeing

ASJC Scopus subject areas

  • Clinical Psychology
  • Psychiatry and Mental health

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