Proposal for establishment of the UK Cranial Reconstruction Registry (UKCRR)

Angelos G Kolias; Diederik O Bulters; Christopher J Cowie; Mark H Wilson; Fardad T Afshari; Adel Helmy; Ellie Broughton; Alexis J Joannides; Bassel Zebian; Stuart E Harrisson; Ciaran S Hill; Animul I Ahmed; Damiano G Barone; Bhaskar Thakur; Catherine J McMahon; David M Adlam; Robert P Bentley; Christos M Tolias; Patrick M Mitchell; Peter C Whitfield; Giles R Critchley; Antonio Belli; Paul M Brennan; Peter J Hutchinson; British Neurosurgical Trainee Research Collaborative

doi:10.3109/02688697.2013.859657

Proposal for establishment of the UK Cranial Reconstruction Registry (UKCRR)

Angelos G Kolias, Diederik O Bulters, Christopher J Cowie, Mark H Wilson, Fardad T Afshari, Adel Helmy, Ellie Broughton, Alexis J Joannides, Bassel Zebian, Stuart E Harrisson, Ciaran S Hill, Animul I Ahmed, Damiano G Barone, Bhaskar Thakur, Catherine J McMahon, David M Adlam, Robert P Bentley, Christos M Tolias, Patrick M Mitchell, Peter C WhitfieldGiles R Critchley, Antonio Belli, Paul M Brennan, Peter J Hutchinson, British Neurosurgical Trainee Research Collaborative

Research output: Contribution to journal › Article › peer-review

24 Citations (Scopus)

Abstract

BACKGROUND: The increasing utilisation of decompressive craniectomy for traumatic brain injury and stroke has led to an increase in the number of cranioplasties undertaken. Cranioplasty is also undertaken following excision of tumours originating from or invading the skull vault, removal of bone flaps due to post-operative infection, and decompressive craniectomy for the management of rarer causes of brain oedema and/or refractory intracranial hypertension. The existing literature which mainly consists of single-centre, retrospective studies, shows a significant variation in practice patterns and a wide range of morbidity. There also exists a need to measure the outcome as perceived by the patients themselves with patient reported outcome measures (PROMs; functional outcome, quality of life, satisfaction with cosmesis). In the UK, the concept of long-term surveillance of neurosurgical implants is well established with the UK shunt registry. Based on this background, we propose to establish the UK Cranial Reconstruction Registry (UKCRR).

AIM: The overarching aim of the UKCRR is to collect high-quality data about cranioplasties undertaken across the UK and Ireland in order to improve outcomes for patients.

METHODS: Any patient undergoing reconstruction of the skull vault with autologous bone, titanium, or synthetic material in participating units will be eligible for inclusion. Data will be submitted directly by participating units to the Outcome Registry Intervention and Operation Network secure platform. A Steering Committee will be responsible for overseeing the strategic direction and running of the UKCRR.

OUTCOME MEASURES: These will include re-operation due to a cranioplasty-related issue, surgical site infection, re-admission due to a cranioplasty-related issue, unplanned post-operative escalation of care, adverse events, length of stay in admitting unit, destination at discharge from admitting unit, mortality at discharge from admitting unit, neurological status and PROMs during routine follow-up.

CONCLUSION: The UKCRR will be an important pillar in the ongoing efforts to optimise the outcomes of patients undergoing cranioplasty.

Original language	English
Pages (from-to)	310-4
Number of pages	5
Journal	British Journal of Neurosurgery
Volume	28
Issue number	3
Early online date	18 Nov 2013
DOIs	https://doi.org/10.3109/02688697.2013.859657
Publication status	Published - 3 Jun 2014

Keywords

Craniocerebral Trauma
Databases as Topic
Decompressive Craniectomy
Head
Humans
Reconstructive Surgical Procedures
Registries
Treatment Outcome
United Kingdom
Journal Article
cranioplasty
stroke
surveillance
traumatic brain injury

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Kolias, A. G., Bulters, D. O., Cowie, C. J., Wilson, M. H., Afshari, F. T., Helmy, A., Broughton, E., Joannides, A. J., Zebian, B., Harrisson, S. E., Hill, C. S., Ahmed, A. I., Barone, D. G., Thakur, B., McMahon, C. J., Adlam, D. M., Bentley, R. P., Tolias, C. M., Mitchell, P. M., ... British Neurosurgical Trainee Research Collaborative (2014). Proposal for establishment of the UK Cranial Reconstruction Registry (UKCRR). British Journal of Neurosurgery, 28(3), 310-4. Advance online publication. https://doi.org/10.3109/02688697.2013.859657

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title = "Proposal for establishment of the UK Cranial Reconstruction Registry (UKCRR)",

abstract = "BACKGROUND: The increasing utilisation of decompressive craniectomy for traumatic brain injury and stroke has led to an increase in the number of cranioplasties undertaken. Cranioplasty is also undertaken following excision of tumours originating from or invading the skull vault, removal of bone flaps due to post-operative infection, and decompressive craniectomy for the management of rarer causes of brain oedema and/or refractory intracranial hypertension. The existing literature which mainly consists of single-centre, retrospective studies, shows a significant variation in practice patterns and a wide range of morbidity. There also exists a need to measure the outcome as perceived by the patients themselves with patient reported outcome measures (PROMs; functional outcome, quality of life, satisfaction with cosmesis). In the UK, the concept of long-term surveillance of neurosurgical implants is well established with the UK shunt registry. Based on this background, we propose to establish the UK Cranial Reconstruction Registry (UKCRR).AIM: The overarching aim of the UKCRR is to collect high-quality data about cranioplasties undertaken across the UK and Ireland in order to improve outcomes for patients.METHODS: Any patient undergoing reconstruction of the skull vault with autologous bone, titanium, or synthetic material in participating units will be eligible for inclusion. Data will be submitted directly by participating units to the Outcome Registry Intervention and Operation Network secure platform. A Steering Committee will be responsible for overseeing the strategic direction and running of the UKCRR.OUTCOME MEASURES: These will include re-operation due to a cranioplasty-related issue, surgical site infection, re-admission due to a cranioplasty-related issue, unplanned post-operative escalation of care, adverse events, length of stay in admitting unit, destination at discharge from admitting unit, mortality at discharge from admitting unit, neurological status and PROMs during routine follow-up.CONCLUSION: The UKCRR will be an important pillar in the ongoing efforts to optimise the outcomes of patients undergoing cranioplasty.",

keywords = "Craniocerebral Trauma, Databases as Topic, Decompressive Craniectomy, Head, Humans, Reconstructive Surgical Procedures, Registries, Treatment Outcome, United Kingdom, Journal Article, cranioplasty, stroke, surveillance, traumatic brain injury",

author = "Kolias, {Angelos G} and Bulters, {Diederik O} and Cowie, {Christopher J} and Wilson, {Mark H} and Afshari, {Fardad T} and Adel Helmy and Ellie Broughton and Joannides, {Alexis J} and Bassel Zebian and Harrisson, {Stuart E} and Hill, {Ciaran S} and Ahmed, {Animul I} and Barone, {Damiano G} and Bhaskar Thakur and McMahon, {Catherine J} and Adlam, {David M} and Bentley, {Robert P} and Tolias, {Christos M} and Mitchell, {Patrick M} and Whitfield, {Peter C} and Critchley, {Giles R} and Antonio Belli and Brennan, {Paul M} and Hutchinson, {Peter J} and {British Neurosurgical Trainee Research Collaborative}",

year = "2014",

month = jun,

day = "3",

doi = "10.3109/02688697.2013.859657",

language = "English",

volume = "28",

pages = "310--4",

journal = "British Journal of Neurosurgery",

issn = "0268-8697",

publisher = "Taylor & Francis",

number = "3",

}

Kolias, AG, Bulters, DO, Cowie, CJ, Wilson, MH, Afshari, FT, Helmy, A, Broughton, E, Joannides, AJ, Zebian, B, Harrisson, SE, Hill, CS, Ahmed, AI, Barone, DG, Thakur, B, McMahon, CJ, Adlam, DM, Bentley, RP, Tolias, CM, Mitchell, PM, Whitfield, PC, Critchley, GR, Belli, A, Brennan, PM, Hutchinson, PJ & British Neurosurgical Trainee Research Collaborative 2014, 'Proposal for establishment of the UK Cranial Reconstruction Registry (UKCRR)', British Journal of Neurosurgery, vol. 28, no. 3, pp. 310-4. https://doi.org/10.3109/02688697.2013.859657

TY - JOUR

T1 - Proposal for establishment of the UK Cranial Reconstruction Registry (UKCRR)

AU - Kolias, Angelos G

AU - Bulters, Diederik O

AU - Cowie, Christopher J

AU - Wilson, Mark H

AU - Afshari, Fardad T

AU - Helmy, Adel

AU - Broughton, Ellie

AU - Joannides, Alexis J

AU - Zebian, Bassel

AU - Harrisson, Stuart E

AU - Hill, Ciaran S

AU - Ahmed, Animul I

AU - Barone, Damiano G

AU - Thakur, Bhaskar

AU - McMahon, Catherine J

AU - Adlam, David M

AU - Bentley, Robert P

AU - Tolias, Christos M

AU - Mitchell, Patrick M

AU - Whitfield, Peter C

AU - Critchley, Giles R

AU - Belli, Antonio

AU - Brennan, Paul M

AU - Hutchinson, Peter J

AU - British Neurosurgical Trainee Research Collaborative

PY - 2014/6/3

Y1 - 2014/6/3

N2 - BACKGROUND: The increasing utilisation of decompressive craniectomy for traumatic brain injury and stroke has led to an increase in the number of cranioplasties undertaken. Cranioplasty is also undertaken following excision of tumours originating from or invading the skull vault, removal of bone flaps due to post-operative infection, and decompressive craniectomy for the management of rarer causes of brain oedema and/or refractory intracranial hypertension. The existing literature which mainly consists of single-centre, retrospective studies, shows a significant variation in practice patterns and a wide range of morbidity. There also exists a need to measure the outcome as perceived by the patients themselves with patient reported outcome measures (PROMs; functional outcome, quality of life, satisfaction with cosmesis). In the UK, the concept of long-term surveillance of neurosurgical implants is well established with the UK shunt registry. Based on this background, we propose to establish the UK Cranial Reconstruction Registry (UKCRR).AIM: The overarching aim of the UKCRR is to collect high-quality data about cranioplasties undertaken across the UK and Ireland in order to improve outcomes for patients.METHODS: Any patient undergoing reconstruction of the skull vault with autologous bone, titanium, or synthetic material in participating units will be eligible for inclusion. Data will be submitted directly by participating units to the Outcome Registry Intervention and Operation Network secure platform. A Steering Committee will be responsible for overseeing the strategic direction and running of the UKCRR.OUTCOME MEASURES: These will include re-operation due to a cranioplasty-related issue, surgical site infection, re-admission due to a cranioplasty-related issue, unplanned post-operative escalation of care, adverse events, length of stay in admitting unit, destination at discharge from admitting unit, mortality at discharge from admitting unit, neurological status and PROMs during routine follow-up.CONCLUSION: The UKCRR will be an important pillar in the ongoing efforts to optimise the outcomes of patients undergoing cranioplasty.

AB - BACKGROUND: The increasing utilisation of decompressive craniectomy for traumatic brain injury and stroke has led to an increase in the number of cranioplasties undertaken. Cranioplasty is also undertaken following excision of tumours originating from or invading the skull vault, removal of bone flaps due to post-operative infection, and decompressive craniectomy for the management of rarer causes of brain oedema and/or refractory intracranial hypertension. The existing literature which mainly consists of single-centre, retrospective studies, shows a significant variation in practice patterns and a wide range of morbidity. There also exists a need to measure the outcome as perceived by the patients themselves with patient reported outcome measures (PROMs; functional outcome, quality of life, satisfaction with cosmesis). In the UK, the concept of long-term surveillance of neurosurgical implants is well established with the UK shunt registry. Based on this background, we propose to establish the UK Cranial Reconstruction Registry (UKCRR).AIM: The overarching aim of the UKCRR is to collect high-quality data about cranioplasties undertaken across the UK and Ireland in order to improve outcomes for patients.METHODS: Any patient undergoing reconstruction of the skull vault with autologous bone, titanium, or synthetic material in participating units will be eligible for inclusion. Data will be submitted directly by participating units to the Outcome Registry Intervention and Operation Network secure platform. A Steering Committee will be responsible for overseeing the strategic direction and running of the UKCRR.OUTCOME MEASURES: These will include re-operation due to a cranioplasty-related issue, surgical site infection, re-admission due to a cranioplasty-related issue, unplanned post-operative escalation of care, adverse events, length of stay in admitting unit, destination at discharge from admitting unit, mortality at discharge from admitting unit, neurological status and PROMs during routine follow-up.CONCLUSION: The UKCRR will be an important pillar in the ongoing efforts to optimise the outcomes of patients undergoing cranioplasty.

KW - Craniocerebral Trauma

KW - Databases as Topic

KW - Decompressive Craniectomy

KW - Head

KW - Humans

KW - Reconstructive Surgical Procedures

KW - Registries

KW - Treatment Outcome

KW - United Kingdom

KW - Journal Article

KW - cranioplasty

KW - stroke

KW - surveillance

KW - traumatic brain injury

U2 - 10.3109/02688697.2013.859657

DO - 10.3109/02688697.2013.859657

M3 - Article

C2 - 24237069

SN - 0268-8697

VL - 28

SP - 310

EP - 314

JO - British Journal of Neurosurgery

JF - British Journal of Neurosurgery

IS - 3

ER -

Proposal for establishment of the UK Cranial Reconstruction Registry (UKCRR)

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