Perceptions, Experiences, and Needs of Parents of Culturally and Linguistically Diverse Children with Autism: a Scoping Review

Despina Papoudi; Clara Rübner Jørgensen; Karen Guldberg; Hedda Meadan; Laura Cristescu; Stacy Nicole McGuire

doi:10.1007/s40489-020-00210-1

Perceptions, Experiences, and Needs of Parents of Culturally and Linguistically Diverse Children with Autism: a Scoping Review

Despina Papoudi^*
, Clara Rübner Jørgensen
, Karen Guldberg
, Hedda Meadan
, Laura Cristescu (Contributor)
, Stacy Nicole McGuire (Contributor)

^*Corresponding author for this work

Research output: Contribution to journal › Review article › peer-review

3 Citations (Scopus)

546 Downloads (Pure)

Abstract

A scoping review of studies carried out in the UK and the USA was conducted to explore the perceptions, experiences, and needs of culturally and linguistically diverse families of children with autism. Overall, 32 articles met the inclusion criteria, 25 studies were conducted in the USA and 7 studies in the UK. Four themes emerged including (a) knowledge and beliefs about autism and their impact on the family; (b) autism and family life; (c) family experiences of accessing services and support, and parents’ needs; and (d) multilanguage. Findings highlighted that family perceptions of autism are influenced by an often-reported lack of knowledge; experiences include social stigma as well as difficulties in having access to services. Needs indicate the development of culturally sensitive interventions, information in multiple languages, and parent–professional collaboration. Implications for research, policy, and practice are included.

Original language	English
Pages (from-to)	195-212
Number of pages	18
Journal	Review Journal of Autism and Developmental Disorders
Volume	8
DOIs	https://doi.org/10.1007/s40489-020-00210-1
Publication status	Published - 16 Jun 2020

Bibliographical note

Acknowledgments
We would like to thank the graduate students Ms. Andreea Laura Cristescu (UK based) and Ms. Stacy Nicole McGuire (USA based) who assisted with the matrix and the inter-rater reliability check.

Publisher Copyright:
© 2020, The Author(s).

Keywords

Autism
Bilingualism
Culture
Ethnicity
Multilingualism
Parents

ASJC Scopus subject areas

Developmental Neuroscience
Cognitive Neuroscience
Psychiatry and Mental health
Behavioral Neuroscience

Access to Document

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Papoudi_et_al_2020_Perceptions_experiences_and_needs_of_parents_Review Journal of Autism and Developmental DisordersFinal published version, 586 KBLicence: Creative Commons: Attribution (CC BY)

http://link.springer.com/10.1007/s40489-020-00210-1

Cite this

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title = "Perceptions, Experiences, and Needs of Parents of Culturally and Linguistically Diverse Children with Autism: a Scoping Review",

abstract = "A scoping review of studies carried out in the UK and the USA was conducted to explore the perceptions, experiences, and needs of culturally and linguistically diverse families of children with autism. Overall, 32 articles met the inclusion criteria, 25 studies were conducted in the USA and 7 studies in the UK. Four themes emerged including (a) knowledge and beliefs about autism and their impact on the family; (b) autism and family life; (c) family experiences of accessing services and support, and parents{\textquoteright} needs; and (d) multilanguage. Findings highlighted that family perceptions of autism are influenced by an often-reported lack of knowledge; experiences include social stigma as well as difficulties in having access to services. Needs indicate the development of culturally sensitive interventions, information in multiple languages, and parent–professional collaboration. Implications for research, policy, and practice are included.",

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note = "Acknowledgments We would like to thank the graduate students Ms. Andreea Laura Cristescu (UK based) and Ms. Stacy Nicole McGuire (USA based) who assisted with the matrix and the inter-rater reliability check. Publisher Copyright: {\textcopyright} 2020, The Author(s).",

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AU - Guldberg, Karen

AU - Meadan, Hedda

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Perceptions, Experiences, and Needs of Parents of Culturally and Linguistically Diverse Children with Autism: a Scoping Review

Abstract

Bibliographical note

Keywords

ASJC Scopus subject areas

Access to Document

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Cite this