Patient Experience of Systemic Sclerosis–Related Calcinosis: An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire

Lesley Ann Saketkoo; Jessica K. Gordon; Kim Fligelstone; Anne Mawdsley; Humza A. Chaudhry; Antonia Valenzuela; Angela Christensen; Samara M. Khalique; Kelly Jensen; Sophia C. Weinmann; Evan Busman; Lorinda Chung; Vivien M. Hsu; Anne Marie Russell; Virginia D. Steen

doi:10.1016/j.rdc.2023.01.017

Patient Experience of Systemic Sclerosis–Related Calcinosis: An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire

Lesley Ann Saketkoo^*
, Jessica K. Gordon
, Kim Fligelstone
, Anne Mawdsley
, Humza A. Chaudhry
, Antonia Valenzuela
, Angela Christensen
, Samara M. Khalique
, Kelly Jensen
, Sophia C. Weinmann
, Evan Busman
, Lorinda Chung
, Vivien M. Hsu
, Anne Marie Russell
, Virginia D. Steen

^*Corresponding author for this work

Nursing and Midwifery

Research output: Contribution to journal › Article › peer-review

Original language	English
Pages (from-to)	463-481
Number of pages	19
Journal	Rheumatic Disease Clinics of North America
Volume	49
Issue number	2
Early online date	5 Apr 2023
DOIs	https://doi.org/10.1016/j.rdc.2023.01.017
Publication status	Published - May 2023

Bibliographical note

Funding Information:
Rheumatology Research Foundation, Scleroderma and Raynaud's Society UK, The Scleroderma Foundation, Federation of European Scleroderma Associations, Scleroderma Clinical Trials Consortium, EUSTAR, Georgetown University, and the Hospital for Special Surgery.

Keywords

Calcinosis
Digital ulcers
Patient-reported outcomes
Qualitative research
Qualtiy of LIfe
Raynaud phenomenon
Scleroderma
Self-Management

ASJC Scopus subject areas

Rheumatology

Access to Document

10.1016/j.rdc.2023.01.017

Cite this

Saketkoo, L. A., Gordon, J. K., Fligelstone, K., Mawdsley, A., Chaudhry, H. A., Valenzuela, A., Christensen, A., Khalique, S. M., Jensen, K., Weinmann, S. C., Busman, E., Chung, L., Hsu, V. M., Russell, A. M., & Steen, V. D. (2023). Patient Experience of Systemic Sclerosis–Related Calcinosis: An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire. Rheumatic Disease Clinics of North America, 49(2), 463-481. https://doi.org/10.1016/j.rdc.2023.01.017

@article{7da8b9869f06441ba9efefae2c0e6673,

title = "Patient Experience of Systemic Sclerosis–Related Calcinosis: An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire",

keywords = "Calcinosis, Digital ulcers, Patient-reported outcomes, Qualitative research, Qualtiy of LIfe, Raynaud phenomenon, Scleroderma, Self-Management",

author = "Saketkoo, \{Lesley Ann\} and Gordon, \{Jessica K.\} and Kim Fligelstone and Anne Mawdsley and Chaudhry, \{Humza A.\} and Antonia Valenzuela and Angela Christensen and Khalique, \{Samara M.\} and Kelly Jensen and Weinmann, \{Sophia C.\} and Evan Busman and Lorinda Chung and Hsu, \{Vivien M.\} and Russell, \{Anne Marie\} and Steen, \{Virginia D.\}",

note = "Funding Information: Rheumatology Research Foundation, Scleroderma and Raynaud's Society UK, The Scleroderma Foundation, Federation of European Scleroderma Associations, Scleroderma Clinical Trials Consortium, EUSTAR, Georgetown University, and the Hospital for Special Surgery.",

year = "2023",

month = may,

doi = "10.1016/j.rdc.2023.01.017",

language = "English",

volume = "49",

pages = "463--481",

journal = "Rheumatic Disease Clinics of North America",

issn = "0889-857X",

publisher = "Elsevier",

number = "2",

}

Saketkoo, LA, Gordon, JK, Fligelstone, K, Mawdsley, A, Chaudhry, HA, Valenzuela, A, Christensen, A, Khalique, SM, Jensen, K, Weinmann, SC, Busman, E, Chung, L, Hsu, VM, Russell, AM & Steen, VD 2023, 'Patient Experience of Systemic Sclerosis–Related Calcinosis: An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire', Rheumatic Disease Clinics of North America, vol. 49, no. 2, pp. 463-481. https://doi.org/10.1016/j.rdc.2023.01.017

Patient Experience of Systemic Sclerosis–Related Calcinosis: An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire. / Saketkoo, Lesley Ann; Gordon, Jessica K.; Fligelstone, Kim et al.
In: Rheumatic Disease Clinics of North America, Vol. 49, No. 2, 05.2023, p. 463-481.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Patient Experience of Systemic Sclerosis–Related Calcinosis

T2 - An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire

AU - Saketkoo, Lesley Ann

AU - Gordon, Jessica K.

AU - Fligelstone, Kim

AU - Mawdsley, Anne

AU - Chaudhry, Humza A.

AU - Valenzuela, Antonia

AU - Christensen, Angela

AU - Khalique, Samara M.

AU - Jensen, Kelly

AU - Weinmann, Sophia C.

AU - Busman, Evan

AU - Chung, Lorinda

AU - Hsu, Vivien M.

AU - Russell, Anne Marie

AU - Steen, Virginia D.

N1 - Funding Information: Rheumatology Research Foundation, Scleroderma and Raynaud's Society UK, The Scleroderma Foundation, Federation of European Scleroderma Associations, Scleroderma Clinical Trials Consortium, EUSTAR, Georgetown University, and the Hospital for Special Surgery.

PY - 2023/5

Y1 - 2023/5

KW - Calcinosis

KW - Digital ulcers

KW - Patient-reported outcomes

KW - Qualitative research

KW - Qualtiy of LIfe

KW - Raynaud phenomenon

KW - Scleroderma

KW - Self-Management

UR - https://www.scopus.com/pages/publications/85151539785

U2 - 10.1016/j.rdc.2023.01.017

DO - 10.1016/j.rdc.2023.01.017

M3 - Article

C2 - 37028847

AN - SCOPUS:85151539785

SN - 0889-857X

VL - 49

SP - 463

EP - 481

JO - Rheumatic Disease Clinics of North America

JF - Rheumatic Disease Clinics of North America

IS - 2

ER -

Saketkoo LA, Gordon JK, Fligelstone K, Mawdsley A, Chaudhry HA, Valenzuela A et al. Patient Experience of Systemic Sclerosis–Related Calcinosis: An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire. Rheumatic Disease Clinics of North America. 2023 May;49(2):463-481. Epub 2023 Apr 5. doi: 10.1016/j.rdc.2023.01.017