Patient and public involvement in primary care research - an example of ensuring its sustainability

Clare Jinks; Pam Carter; Carol Rhodes; Robert Taylor; Roger Beech; Krysia Dziedzic; Steven Blackburn; Rhian Hughes; Bie Nio Ong

doi:10.1186/s40900-016-0015-1

Patient and public involvement in primary care research - an example of ensuring its sustainability

Clare Jinks
, Pam Carter
, Carol Rhodes
, Robert Taylor
, Roger Beech
, Krysia Dziedzic
, Steven Blackburn
, Rhian Hughes
, Bie Nio Ong

Applied Health Sciences

Research output: Contribution to journal › Article › peer-review

Abstract

BACKGROUND: The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects.

METHODS: This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes.

RESULTS: We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships.

CONCLUSIONS: The paper concludes about the more general applicability of the Centre's model for the long-term sustainability of PPI in research.

Original language	English
Pages (from-to)	1
Journal	Research Involvement and Engagement
Volume	2
DOIs	https://doi.org/10.1186/s40900-016-0015-1
Publication status	Published - 2016

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Cite this

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title = "Patient and public involvement in primary care research - an example of ensuring its sustainability",

abstract = "BACKGROUND: The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects.METHODS: This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes.RESULTS: We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships.CONCLUSIONS: The paper concludes about the more general applicability of the Centre's model for the long-term sustainability of PPI in research.",

author = "Clare Jinks and Pam Carter and Carol Rhodes and Robert Taylor and Roger Beech and Krysia Dziedzic and Steven Blackburn and Rhian Hughes and Ong, \{Bie Nio\}",

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doi = "10.1186/s40900-016-0015-1",

language = "English",

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TY - JOUR

T1 - Patient and public involvement in primary care research - an example of ensuring its sustainability

AU - Jinks, Clare

AU - Carter, Pam

AU - Rhodes, Carol

AU - Taylor, Robert

AU - Beech, Roger

AU - Dziedzic, Krysia

AU - Blackburn, Steven

AU - Hughes, Rhian

AU - Ong, Bie Nio

PY - 2016

Y1 - 2016

N2 - BACKGROUND: The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects.METHODS: This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes.RESULTS: We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships.CONCLUSIONS: The paper concludes about the more general applicability of the Centre's model for the long-term sustainability of PPI in research.

AB - BACKGROUND: The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects.METHODS: This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes.RESULTS: We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships.CONCLUSIONS: The paper concludes about the more general applicability of the Centre's model for the long-term sustainability of PPI in research.

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DO - 10.1186/s40900-016-0015-1

M3 - Article

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SN - 2056-7529

VL - 2

SP - 1

JO - Research Involvement and Engagement

JF - Research Involvement and Engagement

ER -

Patient and public involvement in primary care research - an example of ensuring its sustainability

Abstract

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