Obtaining the views of children and young people with autism spectrum disorders about their experience of daily life and social care support

Children with autism spectrum disorders (10 boys and 4 girls aged 7 to 18 years) from a shire county in England were interviewed as part of a study examining the experience and attitudes of families towards daily life and short breaks support. Techniques for obtaining consent and eliciting the children's views are detailed, including triangulation of data. Data were collected on the children's experience of day-to-day life, social workers, and short breaks services, and their wishes. Qualitative data analysis was undertaken using a template approach. The children were positive about family life, although most activities reported were solitary. None understood the role of social workers. Those who attended short breaks enjoyed some activities and peers' company but were disturbed by noise and staff discipline. Difficulties faced in carrying out the research, and limitations arising from the research methods and the nature of ASD are acknowledged, and factors that were helpful in the process are identified.