Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

Olalekan Lee Aiyegbusi*, Jessica Roydhouse, Samantha Cruz Rivera, Paul Kamudoni, Peter Schache, Roger Wilson, Richard Stephens, Melanie Calvert

*Corresponding author for this work

Research output: Contribution to journalComment/debatepeer-review

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Abstract

Patient-reported outcomes (PROs) are used in clinical trials to provide evidence of the benefits and risks of interventions from a patient perspective and to inform regulatory decisions and health policy. The collection of PROs in routine practice can facilitate monitoring of patient symptoms; identification of unmet needs; prioritisation and/or tailoring of treatment to the needs of individual patients and inform value-based healthcare initiatives. However, respondent burden needs to be carefully considered and addressed to avoid high rates of missing data and poor reporting of PRO results, which may lead to poor quality data for regulatory decision making and/or clinical care.
Original languageEnglish
Article number 6026
Pages (from-to)6026
Number of pages8
JournalNature Communications
Volume13
DOIs
Publication statusPublished - 12 Oct 2022

Bibliographical note

© 2022. The Author(s).

Keywords

  • /692/308/409
  • Perspective
  • /692/308/2779
  • /692/700/784
  • perspective
  • Delivery of Health Care
  • Humans
  • Data Collection
  • Health Policy
  • Patient Reported Outcome Measures

ASJC Scopus subject areas

  • General
  • Physics and Astronomy(all)
  • Chemistry(all)
  • Biochemistry, Genetics and Molecular Biology(all)

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