Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse led intervention: study protocol for a cluster randomised controlled trial

Fiona Irvine; Howard  Ring; Nakita Gilbert; Roxanne Hook; Adam Platt; Christopher Smith; Cam Donaldson; Elizabeth Jones; Joanna Kelly; Adrian Mander; Caroline Murphy; Mark Pennington; Angela Pullen; Marcus Redley; Simon Rowe; James Wason

Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse led intervention: study protocol for a cluster randomised controlled trial

Fiona Irvine, Howard Ring, Nakita Gilbert, Roxanne Hook, Adam Platt, Christopher Smith, Cam Donaldson, Elizabeth Jones, Joanna Kelly, Adrian Mander, Caroline Murphy, Mark Pennington, Angela Pullen, Marcus Redley, Simon Rowe, James Wason

Nursing and Midwifery

Research output: Contribution to journal › Article › peer-review

Abstract

In adults with intellectual disability (ID) and epilepsy there are suggestions that improvements in management may follow introduction of epilepsy nurse led care. However, this has not been tested in a definitive clinical trial and results cannot be generalised from general population studies as epilepsy tends to be more severe and to involve additional clinical comorbidities in adults with ID. This trial investigates whether nurses with expertise in epilepsy and ID, working proactively to a clinically defined role, can improve clinical and quality of life outcomes in the management of epilepsy within this population, compared to treatment as usual. The trial also aims to establish whether any perceived benefits represent good value for money.

Original language	English
Journal	Trials
Publication status	Accepted/In press - 31 May 2016

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Irvine, F., Ring, H., Gilbert, N., Hook, R., Platt, A., Smith, C., Donaldson, C., Jones, E., Kelly, J., Mander, A., Murphy, C., Pennington, M., Pullen, A., Redley, M., Rowe, S., & Wason, J. (Accepted/In press). Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse led intervention: study protocol for a cluster randomised controlled trial. Trials.

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title = "Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse led intervention: study protocol for a cluster randomised controlled trial",

abstract = "In adults with intellectual disability (ID) and epilepsy there are suggestions that improvements in management may follow introduction of epilepsy nurse led care. However, this has not been tested in a definitive clinical trial and results cannot be generalised from general population studies as epilepsy tends to be more severe and to involve additional clinical comorbidities in adults with ID. This trial investigates whether nurses with expertise in epilepsy and ID, working proactively to a clinically defined role, can improve clinical and quality of life outcomes in the management of epilepsy within this population, compared to treatment as usual. The trial also aims to establish whether any perceived benefits represent good value for money.",

author = "Fiona Irvine and Howard Ring and Nakita Gilbert and Roxanne Hook and Adam Platt and Christopher Smith and Cam Donaldson and Elizabeth Jones and Joanna Kelly and Adrian Mander and Caroline Murphy and Mark Pennington and Angela Pullen and Marcus Redley and Simon Rowe and James Wason",

year = "2016",

month = may,

day = "31",

language = "English",

journal = "Trials",

issn = "1745-6215",

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T1 - Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse led intervention

T2 - study protocol for a cluster randomised controlled trial

AU - Irvine, Fiona

AU - Ring, Howard

AU - Gilbert, Nakita

AU - Hook, Roxanne

AU - Platt, Adam

AU - Smith, Christopher

AU - Donaldson, Cam

AU - Jones, Elizabeth

AU - Kelly, Joanna

AU - Mander, Adrian

AU - Murphy, Caroline

AU - Pennington, Mark

AU - Pullen, Angela

AU - Redley, Marcus

AU - Rowe, Simon

AU - Wason, James

PY - 2016/5/31

Y1 - 2016/5/31

N2 - In adults with intellectual disability (ID) and epilepsy there are suggestions that improvements in management may follow introduction of epilepsy nurse led care. However, this has not been tested in a definitive clinical trial and results cannot be generalised from general population studies as epilepsy tends to be more severe and to involve additional clinical comorbidities in adults with ID. This trial investigates whether nurses with expertise in epilepsy and ID, working proactively to a clinically defined role, can improve clinical and quality of life outcomes in the management of epilepsy within this population, compared to treatment as usual. The trial also aims to establish whether any perceived benefits represent good value for money.

AB - In adults with intellectual disability (ID) and epilepsy there are suggestions that improvements in management may follow introduction of epilepsy nurse led care. However, this has not been tested in a definitive clinical trial and results cannot be generalised from general population studies as epilepsy tends to be more severe and to involve additional clinical comorbidities in adults with ID. This trial investigates whether nurses with expertise in epilepsy and ID, working proactively to a clinically defined role, can improve clinical and quality of life outcomes in the management of epilepsy within this population, compared to treatment as usual. The trial also aims to establish whether any perceived benefits represent good value for money.

M3 - Article

SN - 1745-6215

JO - Trials

JF - Trials

ER -

Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse led intervention: study protocol for a cluster randomised controlled trial

Abstract

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