Health-related quality of life in adolescents with juvenile idiopathic arthritis

Karen Shaw, Taunton Southwood, CM Duffy, Janet McDonagh

Research output: Contribution to journalArticle

87 Citations (Scopus)


OBJECTIVE: To describe the health-related quality of life (HRQOL) of adolescents with juvenile idiopathic arthritis (JIA), and to examine the usefulness of the Juvenile Arthritis Quality of Life Questionnaire (JAQQ) in a UK context. It was hypothesized that HRQOL would decrease with worsening disease and disability. METHODS: Patients with JIA ages 11, 14, and 17 years were recruited from 10 major rheumatology centers. HRQOL was measured using the JAQQ. Other data were core outcome variables including the Childhood Health Assessment Questionnaire, demographic characteristics, arthritis-related knowledge, and satisfaction with health care. RESULTS: Questionnaires were completed by 308 adolescents. One-fifth had persistent oligoarthritis. Median disease duration was 5.7 years (range
Original languageEnglish
Pages (from-to)199-207
Number of pages9
JournalArthritis & Rheumatism
Issue number2
Publication statusPublished - 15 Apr 2006


  • health-related quality of life
  • juvenile idiopathic arthritis
  • functional disability
  • adolescents


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