Family-systems interventions for families of people with an intellectual disability or who are autistic: a systematic review

D. Sutherland*, S. Flynn, O. Kurzeja, J. Griffin, R. Hastings

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

Abstract

Background: Family-systems interventions have been proposed as one way of supporting families of people with an intellectual disability (ID) or who are autistic. This systematic review aimed to summarise what family-systems interventions have been studied with this population, what evidence there is for their effectiveness and families' experiences of the interventions. Methods: The review was preregistered on PROSPERO (CRD42022297516). We searched five electronic databases, identified 6908 records and screened 72 full texts. Study quality was evaluated using the Mixed Methods Appraisal Tool, and a narrative synthesis was used. Results: We identified 13 eligible articles with 292 participating families. Most studies reported positive effects of the interventions on wellbeing and family relationships, and families reported positive experiences. However, research quality was poor and there are no any sufficiently powered randomised controlled trials demonstrating family-systems interventions' effectiveness for this population. Conclusions: There is a need for higher-quality research to establish whether family-systems interventions are beneficial for families of people who have an ID or who are autistic.

Original languageEnglish
Pages (from-to)1003-1028
Number of pages26
JournalJournal of Intellectual Disability Research
Volume67
Issue number10
Early online date2 Aug 2023
DOIs
Publication statusPublished - Oct 2023

Bibliographical note

Publisher Copyright:
© 2023 The Authors. Journal of Intellectual Disability Research published by MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

Keywords

  • autism
  • effectiveness
  • family-systems
  • intellectual disability
  • systematic review
  • systemic therapy

ASJC Scopus subject areas

  • Rehabilitation
  • Arts and Humanities (miscellaneous)
  • Neurology
  • Clinical Neurology
  • Psychiatry and Mental health

Fingerprint

Dive into the research topics of 'Family-systems interventions for families of people with an intellectual disability or who are autistic: a systematic review'. Together they form a unique fingerprint.

Cite this