Abstract
Background: The challenges that autistic young people face when accessing support have been well-documented. However, such issues may be exacerbated for autistic young people who have additional marginalized identities (e.g., being from a minority ethnic group or minority gender) compared to autistic young people who do not have additional marginalized identities.
Methods: We took a participatory approach that included autistic young people with multiple marginalized identities at every stage of the research process. Our team interviewed 13 autistic young people (aged 16 – 25 years) who also identified with other marginalized identities. We analyzed the data using reflexive thematic analysis.
Results: We generated one superordinate theme, which reflected how accessing support was perceived to be challenging for all autistic young people, but especially so for this group with multiple marginalized identities. Within the superordinate theme, we generated three sub-themes that provide examples of how common challenges were felt to be exacerbated for our participants. First, our participants reported difficulties in obtaining timely diagnoses, which hindered access to appropriate support services. Second, they expressed a sense of exclusion from existing support structures, with services often failing to address their unique needs. Finally, cultural and linguistic barriers meant that our participants’ parents and caregivers did not always know how to help them get support. As a result, some of our participants had to advocate for themselves.
Conclusion: Our findings highlight the need for more inclusive and accessible support services that meet the diverse needs of all autistic young people, including those with multiple marginalized identities. Recommendations include offering a variety of support options to accommodate individual preferences and providing ways to empower all autistic people to advocate for their support needs.
Methods: We took a participatory approach that included autistic young people with multiple marginalized identities at every stage of the research process. Our team interviewed 13 autistic young people (aged 16 – 25 years) who also identified with other marginalized identities. We analyzed the data using reflexive thematic analysis.
Results: We generated one superordinate theme, which reflected how accessing support was perceived to be challenging for all autistic young people, but especially so for this group with multiple marginalized identities. Within the superordinate theme, we generated three sub-themes that provide examples of how common challenges were felt to be exacerbated for our participants. First, our participants reported difficulties in obtaining timely diagnoses, which hindered access to appropriate support services. Second, they expressed a sense of exclusion from existing support structures, with services often failing to address their unique needs. Finally, cultural and linguistic barriers meant that our participants’ parents and caregivers did not always know how to help them get support. As a result, some of our participants had to advocate for themselves.
Conclusion: Our findings highlight the need for more inclusive and accessible support services that meet the diverse needs of all autistic young people, including those with multiple marginalized identities. Recommendations include offering a variety of support options to accommodate individual preferences and providing ways to empower all autistic people to advocate for their support needs.
| Original language | English |
|---|---|
| Journal | Autism in Adulthood |
| Publication status | Accepted/In press - 26 Sept 2024 |