Essential data variables for a minimum dataset for head and neck cancer trials and clinical research: HNCIG consensus recommendations and database

Sujith Baliga; Ahmad K. Abou-Foul; Pablo Parente; Petr Szturz; Juliette Thariat; Aditya Shreenivas; Paul Nankivell; Federica  Bertolini; Julian Blau; Dukagjin Blakaj; Sinead Brennan; Aina Brunet; Thiago Bueno De Oliveira; Barbara Burtness; Alberto Carral Maseda; Velda Ling-Yu Chow; Melvin LK Chua; Mischa de Ridder; Satya Garikipati; Nobuhiro Hanai; Francis Cho Hao Ho; Shao Hui Huang; Naomi Kiyota; Konrad Klinghammer; Luiz P. Kowalski; Dora L Kwong; Lachlan J McDowell; Marco Carlo Merlano; Sudhir Nair; Panagoita Economopoulou; Jens Overgaard; Amanda Psyrri; Silke Tribius; John Waldron; Sue S. Yom; Hisham Mehanna

doi:10.1016/j.ejca.2024.114038

Essential data variables for a minimum dataset for head and neck cancer trials and clinical research: HNCIG consensus recommendations and database

Sujith Baliga, Ahmad K. Abou-Foul, Pablo Parente, Petr Szturz, Juliette Thariat, Aditya Shreenivas, Paul Nankivell, Federica Bertolini, Julian Blau, Dukagjin Blakaj, Sinead Brennan, Aina Brunet, Thiago Bueno De Oliveira, Barbara Burtness, Alberto Carral Maseda, Velda Ling-Yu Chow, Melvin LK Chua, Mischa de Ridder, Satya Garikipati, Nobuhiro HanaiFrancis Cho Hao Ho, Shao Hui Huang, Naomi Kiyota, Konrad Klinghammer, Luiz P. Kowalski, Dora L Kwong, Lachlan J McDowell, Marco Carlo Merlano, Sudhir Nair, Panagoita Economopoulou, Jens Overgaard, Amanda Psyrri, Silke Tribius, John Waldron, Sue S. Yom, Hisham Mehanna^*

^*Corresponding author for this work

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Abstract

The Head and Neck Cancer International Group (HNCIG) has undertaken an international modified Delphi process to reach consensus on the essential data variables to be included in a minimum database for HNC research. Endorsed by 19 research organisations representing 34 countries, these recommendations provide the framework to facilitate and harmonise data collection and sharing for HNC research. These variables have also been incorporated into a ready to use downloadable HNCIG minimum database, available from the HNCIG website.

Original language	English
Article number	114038
Number of pages	10
Journal	European Journal of Cancer
Volume	203
Early online date	30 Mar 2024
DOIs	https://doi.org/10.1016/j.ejca.2024.114038
Publication status	Published - May 2024

Keywords

Head and Neck cancer
Head and neck squamous cell carcinoma
Cancer database
Data harmonisation
Collaborative research

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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Baliga, S., Abou-Foul, A. K., Parente, P., Szturz, P., Thariat, J., Shreenivas, A., Nankivell, P., Bertolini, F., Blau, J., Blakaj, D., Brennan, S., Brunet, A., Bueno De Oliveira, T., Burtness, B., Carral Maseda, A., Chow, V. L.-Y., Chua, M. LK., de Ridder, M., Garikipati, S., ... Mehanna, H. (2024). Essential data variables for a minimum dataset for head and neck cancer trials and clinical research: HNCIG consensus recommendations and database. European Journal of Cancer, 203, Article 114038. https://doi.org/10.1016/j.ejca.2024.114038

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title = "Essential data variables for a minimum dataset for head and neck cancer trials and clinical research: HNCIG consensus recommendations and database",

abstract = "The Head and Neck Cancer International Group (HNCIG) has undertaken an international modified Delphi process to reach consensus on the essential data variables to be included in a minimum database for HNC research. Endorsed by 19 research organisations representing 34 countries, these recommendations provide the framework to facilitate and harmonise data collection and sharing for HNC research. These variables have also been incorporated into a ready to use downloadable HNCIG minimum database, available from the HNCIG website. ",

keywords = "Head and Neck cancer, Head and neck squamous cell carcinoma, Cancer database, Data harmonisation, Collaborative research",

author = "Sujith Baliga and Abou-Foul, {Ahmad K.} and Pablo Parente and Petr Szturz and Juliette Thariat and Aditya Shreenivas and Paul Nankivell and Federica Bertolini and Julian Blau and Dukagjin Blakaj and Sinead Brennan and Aina Brunet and {Bueno De Oliveira}, Thiago and Barbara Burtness and {Carral Maseda}, Alberto and Chow, {Velda Ling-Yu} and Chua, {Melvin LK} and {de Ridder}, Mischa and Satya Garikipati and Nobuhiro Hanai and Ho, {Francis Cho Hao} and Huang, {Shao Hui} and Naomi Kiyota and Konrad Klinghammer and Kowalski, {Luiz P.} and Kwong, {Dora L} and McDowell, {Lachlan J} and Merlano, {Marco Carlo} and Sudhir Nair and Panagoita Economopoulou and Jens Overgaard and Amanda Psyrri and Silke Tribius and John Waldron and Yom, {Sue S.} and Hisham Mehanna",

year = "2024",

month = may,

doi = "10.1016/j.ejca.2024.114038",

language = "English",

volume = "203",

journal = "European Journal of Cancer",

issn = "0959-8049",

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Baliga, S, Abou-Foul, AK, Parente, P, Szturz, P, Thariat, J, Shreenivas, A, Nankivell, P, Bertolini, F, Blau, J, Blakaj, D, Brennan, S, Brunet, A, Bueno De Oliveira, T, Burtness, B, Carral Maseda, A, Chow, VL-Y, Chua, MLK, de Ridder, M, Garikipati, S, Hanai, N, Ho, FCH, Huang, SH, Kiyota, N, Klinghammer, K, Kowalski, LP, Kwong, DL, McDowell, LJ, Merlano, MC, Nair, S, Economopoulou, P, Overgaard, J, Psyrri, A, Tribius, S, Waldron, J, Yom, SS & Mehanna, H 2024, 'Essential data variables for a minimum dataset for head and neck cancer trials and clinical research: HNCIG consensus recommendations and database', European Journal of Cancer, vol. 203, 114038. https://doi.org/10.1016/j.ejca.2024.114038

TY - JOUR

T1 - Essential data variables for a minimum dataset for head and neck cancer trials and clinical research

T2 - HNCIG consensus recommendations and database

AU - Baliga, Sujith

AU - Abou-Foul, Ahmad K.

AU - Parente, Pablo

AU - Szturz, Petr

AU - Thariat, Juliette

AU - Shreenivas, Aditya

AU - Nankivell, Paul

AU - Bertolini, Federica

AU - Blau, Julian

AU - Blakaj, Dukagjin

AU - Brennan, Sinead

AU - Brunet, Aina

AU - Bueno De Oliveira, Thiago

AU - Burtness, Barbara

AU - Carral Maseda, Alberto

AU - Chow, Velda Ling-Yu

AU - Chua, Melvin LK

AU - de Ridder, Mischa

AU - Garikipati, Satya

AU - Hanai, Nobuhiro

AU - Ho, Francis Cho Hao

AU - Huang, Shao Hui

AU - Kiyota, Naomi

AU - Klinghammer, Konrad

AU - Kowalski, Luiz P.

AU - Kwong, Dora L

AU - McDowell, Lachlan J

AU - Merlano, Marco Carlo

AU - Nair, Sudhir

AU - Economopoulou, Panagoita

AU - Overgaard, Jens

AU - Psyrri, Amanda

AU - Tribius, Silke

AU - Waldron, John

AU - Yom, Sue S.

AU - Mehanna, Hisham

PY - 2024/5

Y1 - 2024/5

N2 - The Head and Neck Cancer International Group (HNCIG) has undertaken an international modified Delphi process to reach consensus on the essential data variables to be included in a minimum database for HNC research. Endorsed by 19 research organisations representing 34 countries, these recommendations provide the framework to facilitate and harmonise data collection and sharing for HNC research. These variables have also been incorporated into a ready to use downloadable HNCIG minimum database, available from the HNCIG website.

AB - The Head and Neck Cancer International Group (HNCIG) has undertaken an international modified Delphi process to reach consensus on the essential data variables to be included in a minimum database for HNC research. Endorsed by 19 research organisations representing 34 countries, these recommendations provide the framework to facilitate and harmonise data collection and sharing for HNC research. These variables have also been incorporated into a ready to use downloadable HNCIG minimum database, available from the HNCIG website.

KW - Head and Neck cancer

KW - Head and neck squamous cell carcinoma

KW - Cancer database

KW - Data harmonisation

KW - Collaborative research

U2 - 10.1016/j.ejca.2024.114038

DO - 10.1016/j.ejca.2024.114038

M3 - Article

C2 - 38579517

SN - 0959-8049

VL - 203

JO - European Journal of Cancer

JF - European Journal of Cancer

M1 - 114038

ER -

Essential data variables for a minimum dataset for head and neck cancer trials and clinical research: HNCIG consensus recommendations and database

Abstract

Keywords

UN SDGs

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