Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?

Marlies S. Wijsenbeek; Francesco Bonella; Leticia Orsatti; Anne Marie Russell; Claudia Valenzuela; Wim A. Wuyts; Walter F. Baile

doi:10.1183/23120541.00422-2021

Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?

Marlies S. Wijsenbeek^*, Francesco Bonella, Leticia Orsatti, Anne Marie Russell, Claudia Valenzuela, Wim A. Wuyts, Walter F. Baile

^*Corresponding author for this work

Nursing and Midwifery

Research output: Contribution to journal › Article › peer-review

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Abstract

Communications between clinicians and patients with idiopathic pulmonary fibrosis (IPF) have the potential to be challenging. The variable course and poor prognosis of IPF complicate discussions around life expectancy but should not prevent clinicians from having meaningful conversations about patients’ fears and needs, while acknowledging uncertainties. Patients want information about the course of their disease and management options, but the provision of information needs to be individualised to the needs and preferences of the patient. Communication from clinicians should be empathetic and take account of the patient’s perceptions and concerns. Models, tools and protocols are available that can help clinicians to improve their interactions with patients. In this article, we consider the difficulties inherent in discussions with patients with IPF and their loved ones, and how clinicians might communicate with patients more effectively, from breaking the news about the diagnosis to providing support throughout the course of the disease.

Original language	English
Article number	00422-2021
Number of pages	8
Journal	ERJ Open Research
Volume	8
Issue number	1
DOIs	https://doi.org/10.1183/23120541.00422-2021
Publication status	Published - 24 Jan 2022

Bibliographical note

Acknowledgements:
The authors meet criteria for authorship as recommended by the International Committee of Medical Journal Editors (ICMJE). The authors did not receive payment for development of this article. Writing assistance was provided by Wendy Morris of FleishmanHillard, London, UK, which was contracted and funded by Boehringer Ingelheim. Boehringer Ingelheim was given the opportunity to review the manuscript for medical and scientific accuracy as well as intellectual property considerations. The page processing charges for this article would be funded by Boehringer Ingelheim.

Publisher Copyright:
© The authors 2022.

ASJC Scopus subject areas

Pulmonary and Respiratory Medicine

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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abstract = "Communications between clinicians and patients with idiopathic pulmonary fibrosis (IPF) have the potential to be challenging. The variable course and poor prognosis of IPF complicate discussions around life expectancy but should not prevent clinicians from having meaningful conversations about patients{\textquoteright} fears and needs, while acknowledging uncertainties. Patients want information about the course of their disease and management options, but the provision of information needs to be individualised to the needs and preferences of the patient. Communication from clinicians should be empathetic and take account of the patient{\textquoteright}s perceptions and concerns. Models, tools and protocols are available that can help clinicians to improve their interactions with patients. In this article, we consider the difficulties inherent in discussions with patients with IPF and their loved ones, and how clinicians might communicate with patients more effectively, from breaking the news about the diagnosis to providing support throughout the course of the disease.",

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Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?

Abstract

Bibliographical note

ASJC Scopus subject areas

UN SDGs

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