Children’s experiences of being diagnosed with cancer at the early stages of treatment; an interpretive phenomenological analysis

Jill Mant, Angela Kirby*, Kathy J. Cox, Amos Burke

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

Being given a diagnosis of cancer is a significant and highly distressing event for both children and their families, but little research has been done to explore and understand children’s feelings. This study aims to understand from the child’s perspective what it feels like to be told you have cancer, with the hope that increased understanding can lead to improved communication and support for children and families. The study uses qualitative methodology. Six children aged 8–12 years with a new diagnosis of cancer took part in two semi-structured interviews at least one week apart. The interviews were conducted using the draw and write technique. The results were analysed using interpretative phenomenological analysis. The report describes the five super-ordinate themes that were identified; initially I felt shocked and scared, chemo is an awful thing, please talk to me; the more I know the better I feel, I will accept treatment and quickly get used to it because I know I will get better and, finally, my family are vital. Implications for clinical practice are discussed. The report highlights the research limitations and areas for future studies.

Original languageEnglish
Pages (from-to)3-18
Number of pages16
JournalClinical Child Psychology and Psychiatry
Volume24
Issue number1
DOIs
Publication statusPublished - 1 Jan 2019

Bibliographical note

Funding Information:
We would like to acknowledge and thank Pia Fagelman, Sophie Knight and Jane tunnacliffe in the Addenbrookes Paediatric Oncology Research Office, who helped coordinate the study and care for all the vital paperwork. J.M. and A.K. are the joint first authors.

Publisher Copyright:
© The Author(s) 2018.

Keywords

  • cancer
  • children
  • communication
  • diagnosis
  • experiences
  • interpretative phenomenological analysis
  • Oncology

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Clinical Psychology
  • Psychiatry and Mental health

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