A scoping review of patient and public perspectives on cell and gene therapies

Karen Macpherson, Olalekan Lee Aiyegbusi, Lauren Elston, Susan Myles, Jennifer Washington, Nisha Sungum , Mark Briggs, Philip Newsome, Melanie Calvert

Research output: Contribution to journalArticlepeer-review

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Abstract

Aims: The development and introduction of cell and gene therapies presents complex social and economic issues. Fully addressing these challenges requires engagement with patients and the public.

Materials and Methods: A systematically conducted scoping review was undertaken to gauge current patient and public knowledge and perspectives, and as such inform requirements for future research, education and engagement activities.

Results: A heterogeneous collection of 35 studies were identified. Levels of knowledge among patients and the public were extremely variable. Studies indicated general acceptance of therapies.

Conclusions: The review identified the need for tailored educational activities, and in particular the importance of addressing misconceptions. There is also a need for robust qualitative research considering perspectives on current and forthcoming licensed therapies.

Original languageEnglish
JournalRegenerative Medicine
Early online date23 Sep 2021
DOIs
Publication statusE-pub ahead of print - 23 Sep 2021

Keywords

  • Cell and tissue based therapy
  • Genetic therapy
  • Patient preference
  • Health knowledge
  • Health education
  • Public opinion
  • attitudes
  • practice

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